The keys to life - Improving Quality of Life for People with Learning Disabilities
The new learning disability strategy in Scotland, following on from, and building on the principles and successes of The same as you?, the original review of service for people with a learning disability, published in 2000.
Footnotes
1. The same as you? learning disability policy published 2000, Scottish Executive
2. The Healthcare Quality Strategy for NHS Scotland-putting people at the heart of our NHS. Scottish Government, 2010 http://www.scotland.gov.uk/Publications/2010/05/10102307/0
3. http://www.scotland.gov.uk/Publications/2012/05/6945
4. http://www.scotland.gov.uk/Publications/2011/11/01120340/10
5. Emerson, E., Hatton, C. (2004) Estimating future need for adult social care services for people with learning disabilities in England. Centre for Disability Research, Lancaster University, Lancaster
6. NHS Health Scotland (2004) Health Needs Assessment Report. People with Learning Disabilities in Scotland. NHS Health Scotland.
7. Smiley, E. (2010) The incidence of mental ill-health in adults with intellectual disabilities. MD Thesis, University of Glasgow.
8. Report on the Future Delivery of Public Services by the Commission chaired by Dr Campbell Christie. Published on 29 June 2011.
9. Nicola Sturgeon, Scottish Parliament, 15 December 2011
10. Reshaping Care for Older People: A Programme for Change 2011-2021
11. Joint Strategic Commissioning Learning and Development Framework published by Scottish Government, NHS Scotland, COSLA and the Joint Improvement Team in 2012 http://www.jitscotland.org.uk/action-areas/commissioning/
12. Guidance on the Procurement of Care and Support Services, published by the Scottish Government and COSLA in 2010. http://www.jitscotland.org.uk/search/?m=1&start=0&q=guidance+on+the+procurement+of+care+and+support+services
13. Modified from Dahlgren G, Whitehead M. Tackling inequalities in health: what can we learn from what has been tried? Background paper for The Kings Fund International Seminar on Tackling Health Inequalities.Ditchley Park, Oxford: King's Fund
14. NHS Health Scotland. People with Learning Disabilities in Scotland: The Health Needs Assessment Report. NHS Scotland, Glasgow. 2004.
15. Tyrer F et al. J Intellect Disabil Res. 2007;51:520-7.
16. Tackling indifference Report 2009 http://www.healthcareimprovementscotland.org/previous_resources/performance_review/tackling_indifference.aspx
17. http://www.scotland.gov.uk/Publications/2008/06/25104032/0
18. NHSScotland Chief Executive's Annual Report 2011/12 http://www.scotland.gov.uk/Publications/2012/11/5027
19. Robertson J., Emerson E., Gregory N., Hatto C., Turner S., Kessissoglou S., and Hallam A. (2000) Lifestyle Related Risk Factors for Poor Health in Residential Settings for People with Intellectual Disabilities. Research in development disabilities 21, 469-486
20. Melville C., Hamilton S., Miller S., Boyle S., Robinson N., Pert C., et al. (2009) Carer Knowledge and Perceptions of Healthy Lifestyles for Adults with Intellectual Disabilities. Journal of Applied Research in Intellectual Disabilities 22, 298-306.
21. Ibid
22. NHSScotland Chief Executive's Annual Report 2011/12 http://www.scotland.gov.uk/Publications/2012/11/5027
23. Scottish Consortium for Learning Disabilities (2011). You Can Do It! DVD, Paper Bag
24. http://www.chps.org.uk/content/default.asp?page=s619_34_1
25. Lawrence M., Kerr S., Darbyshire C., Middleton A., Fitzsimmons L. and Watson H. (2009 Tobacco and Alcohol Use in People who have a Learning Disability: Giving Voice to their Health Promotion Needs. The Queens Nursing Institute
26. http://www.scotland.gov.uk/Resource/0039/00391946.pdf
28. http://www.nhsinform.co.uk/
29. http://www.nhsinform.co.uk/Easy-Info
30. Barr O., Gilgunn J., Kane T., Moore G. (1999) Health Screening for People with Learning Disabilities by a Community Nursing Learning Disability Service in Northern Ireland. Journal of Advanced Nursing 29, 1482-1491.
31. National Oral Health Improvement Strategy for Priority Groups. Scottish Government, May 2012 http://www.scotland.gov.uk/Publications/2012/05/7031/0
32. http://www.sign.ac.uk/pdf/sign70.pdf
33. Guidelines for meeting Audiological Needs of Adults with Learning Disabilities. NHS Scotland 2009 www.scotland.gov.uk/Resource/Doc/924/0092407.doc
34. http://www.scld.org.uk/SAYevaluation
35. http://www.healthscotland.com/uploads/documents/5809-Updated%20Tip%20Cards%20-%2031.01.08.pdf
36. NHS Quality Improvement Scotland, 2009
37. Brown et al. 2012; Bradbury-Jones et al. 2013
38. NHS Health Scotland 'Health Needs Assessment Report - People with Learning Disabilities in Scotland' 2004
39. www.bespoken.me/video/listen-to-me-edward-s-story
40. Estimating Future Needs/Demand for support for adults with learning disabilities in England, Institute for Health Research, Lancaster University 2004
41. Kerr,D. Dementia in people with intellectual disabilities. Centre for Research on Families and Relationships.University of Edinburgh
42. Holland,A.J Hon,J.Hubbart,F.A., Stevens,V.F.Watson,P.(1998). Population based study of prevalence and presentation of dementia in adults with Down's syndrome. British Journal of Psychiatry.172,493-498
43. Prasher, V.P., End Stage Dementia in adults with Down's syndrome. International Journal of geriatric Psychiatry, 1995.10:p.3
44. Kerr,D., Understanding Learning Disability and Dementia. Developing Effective Interventions. Jessica Kingsley Publishers London and Philadelphia 2007
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46. http://www.scotland.gov.uk/Publications/2010/09/10151751/17
47. http://www.scotland.gov.uk/Publications/2011/05/31085414/0
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49. Summerfield C, Gill B. Social Trends 35. London: Office for National Statistics, 2005.
50. Gunaratnam Y, A briefing paper for managers and trustees. Widening Access to hospice care November 2000
51. Tuffrey-Wijne I. Living with learning disabilities, dying with cancer: thirteen personal stories. London. Jessica Kingsley 2010
52. Tuffrey-Wijne I. How to break bad news.To people with intellectual disabilities.A guide for carers and professionals. London.Jessicaa Kingsley 2013.
53. Disability Rights Commission(DRC).Equal treatment:closing the gap-A formal investigation into the physical health inequalities experienced by people with learning disabilities and/or mental health problems.London:DRC, 2006.
54. Institute for Health Research. Estimating Future Need / Demand for Support for Adults with Learning Disabilities in England. Institute for Health Research, Lancaster University,2004.
55. National End of Life Care Programme. The Route to succeed in the end of life care-achieving quality for people with learning disabilities. London :National End of Life Care Programme
56. Oswin, M. 1991. Am I Allowed to Cry? A study of bereavement amongst people who have learning difficulties. London: Human Horizons
57. Doka, 2002 Living with grief: loss in later life. Hospice Foundation of America
58. http://www.scotland.gov.uk/Publications/2013/04/8699
59. How is it going? Curtice 2006, SCLD Glasgow
60. http://www.scotland.gov.uk/Publications/2013/04/8699/1
61. http://www.legislation.gov.uk/asp/2001/10/contents#pt5-pb2-l1g89
62. http://www.scotland.gov.uk/Publications/2008/06/25093503/0
65. Disability Rights Commission (2006a). Disability Discrimination Act: Provision and Use of Transport Vehicles, Statutory Code of Practice, Supplement to Part 3 Code of Practice, London: The Stationery Office
66. Ibid (p12)
67. National Local Area Co-Ordination Development Team. (2010a). Local Area Co-Ordination in Scotland: 2009-2010, Glasgow: Scottish Consortium for Learning Disability
68. http://www.scld.org.uk/local-area-co-ordination/contacts-list [accessed on the 18/04/13]
69. National Local Area Co-Ordination Development Team. (2010b). Values into Practice: A Framework for Local Area Co-ordination in Scotland, Glasgow: Scottish Consortium for Learning Disability, available at http://www.scld.org.uk/library-publications/values-practice-framework [accessed on the 31/05/13]
70. Ibid (pages 8-9)
71. http://www.siaa.org.uk/content/view/14/27/
72. Researched and published by Lemos&Crane working with the Foundation for People with Learning Disabilities and supported by Esmée Fairbairn Foundation. © Lemos&Crane 2012
73. SCLD esay statistics 2011
74. Growing up in Scotland: Parenting and the Community Context Report, Scottish Government 2009 http://www.scotland.gov.uk/Publications/2009/03/13143448/4
75. Allan, G. 2005. 'Boundaries of Friendship' in McKie, L. and Cunningham-Burley, S. (eds.) Families in Society: Boundaries and Relationships. : Policy Press.
76. http://www.equalfutures.org.uk/index.php?option=com_content&view=article&id=78
77. http://www.enable.org.uk/services/Friends/Pages/dates-n-mates.aspx
78. Caring Together The Carers Strategy for Scotland 2010 - 2015, Scottish Government, http://www.scotland.gov.uk/Publications/2010/07/23153304/0
79. http://www.scotland.gov.uk51a82a58-2284-4797-b6c2-c88db1aa44c3
80. http://www.scotland.gov.uk/Topics/People/Young-People/gettingitright
82. http://www.echr.coe.int/NR/rdonlyres/D5CC24A7-DC13-4318-B457- 5C9014916D7A/0/Convention_ENG.pdf
83. http://www.scotland.gov.uk/Publications/2004/10/20066/44708
84. http://www.scotland.gov.uk/Resource/Doc/347717/0115820.pdf
85. The Doran Review http://www.scotland.gov.uk/Publications/2012/11/7084/0
86. Education (Additional Support for Learning) (Scotland) Act 2004
87. Education (Additional Support for Learning) (Scotland) Act 2009
88. http://www.scotland.gov.uk/Resource/Doc/46922/0024040.pdf
89. http://enquire.org.uk/publications/factsheets/choosing-a-school and http://enquire.org.uk/20100622/wp-content/uploads/2010/11/placing-requests.pdf
90. http://www.skillsdevelopmentscotland.co.uk/
91. http://enquire.org.uk/20100622/wp-content/uploads/2010/11/progressing-beyond-school-after-16.pdf
92. http://www.scotland.gov.uk95c6efc4-601f-44b8-afdf-59fa160ce7f9
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94. http://www.scotlandscolleges.ac.uk/Supported-Programmes/profound-and-complex-needs.html
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