SMASAC Short Life Working Group on Lymphoedema - Lymphoedema Care in Scotland, Achieving Equity and Quality

A Scottish Medical and Scientific Advisory Committee Report. Providing information on the nature and extent of Lymphoedema. Making recommendations for Scottish Government Health and Social Care Directorate, Health Boards, NHS Education Scotland and Healthcare Improvement Scotland


Appendix 7: Workforce Competencies and Educational Requirements

Table 1

Key outcomes to be achieved

Reduce incidence, severity and complications, ensure early diagnosis, support self management and enhance quality of life

Members of the health and social care team responsible

Suggested competencies

Educational requirement in relation to lymphoedema

All registered health care professionals (HCPs) in all settings

Identify individuals who are at risk of lymphoedema

Advise on general and specific lymphoedema risk reductions strategies

Recognise signs of early lymphoedema

Recognise signs of cellulitis and refer for assessment and treatment promptly when suspected

Direct individuals to appropriate information and resources

Be sensitive to concerns and understanding of needs

Support individuals to manage their own care as far as they are able

Short term:

  • Communication strategy to raise awareness; online modules relevant to particular groups
  • General awareness raising locally re referral pathways and sources of expertise, information and support

Long Term:

Basic information integrated at key points in UG education for all HCPs on: lymphatic system, its function re lymphoedema, who is at risk, what they can do to minimise risk, clinical signs of lymphoedema and cellulitis

Non-registered health and social carers, particularly in primary care or care of older people

Implement skin care to protect its integrity and prevent cellulitis

Reporting swelling or infection promptly

Encourage movement and elevation of lower limbs when seated

Support individuals to manage their own care as far as they are able

Basic preventative care integrated into training

Table 2

Key outcomes to be achieved

  • Anticipate, reduce risk, recognise and treat lymphoedema of mixed origin
  • Anticipate, prevent and manage specific complications arising in lymphoedema or advancing illness to maximise quality of life, including lymphorrhoea and other skin problems

Members of the care team responsible

Suggested competencies

Educational requirement in relation to lymphoedema

Lymphoedema champions particularly in primary care, elderly care and palliative care settings responsible for individuals with chronic lower limb oedema or requiring end of life care

Recognise and treat chronic oedema of mixed origin (venous, lymphatic, multi-organ failure)

Recognise and address treatable contributory factors

Implement appropriate skin care, activity/positioning and education to minimise risk of infection, lymphorrhoea, ulceration and trauma

Apply appropriate dressings and compression if swelling or lymphorrhoea develops

Involve lymphoedema practitioners for advice on helpful strategies

Short modules, possibly on-line or blended and as part of specialist palliative care courses

Specific professional or context based on-line resources/podcasts e.g. for podiatrists

Opportunities for experience of patients in a lymphoedema clinic with periodic updates

Table 3

Key outcomes to be achieved

Routinely screen, monitor and support self management as part of an agreed prevention protocol OR as part of a long term maintenance programme, under supervision/support of an appropriately trained registered HCP

Members of the care team responsible

Suggested competencies

Educational requirement in relation to lymphoedema

Health Care Support Workers (HCSWs) Band 3-4 or registered practitioners in key roles/settings where there is increased risk or incidence of lymphoedema, e.g. in oncology OR where there is increased incidence of chronic oedema, e.g. in oncology , elderly care or primary care settings OR in a specialist lymphoedema clinic

Provide specific Information and advice to at risk individuals or those with lymphoedema

Measure limb volumes

Undertake standardised assessment procedures

Fit and replace compression garments in those meeting agreed criteria or those whose lymphoedema/chronic oedema is stable

Short training module, blended online/face to face with mentorship and supervision until agreed level of competence achieved

Periodic review of skills

Table 4

Key outcomes to be achieved

  • Assessment of individuals to confirm presence of lymphoedema and agree a plan of treatment with the patient
  • Undertake management according to an agreed treatment pathway for uncomplicated lymphoedema

Members of the health and social care team responsible

Suggested competencies

Educational requirement in relation to lymphoedema

Lymphoedema Practitioner in particular settings/roles whose regular exposure to people with lymphoedema would allow development of confidence and competence, e.g. oncology, paediatrics, care of older people, dermatology, vascular services

Comprehensive assessment of individuals with lymphoedema including assessment of limb volume and skin and tissue changes in order to stage it.

Supervise HCSWs with a lymphoedema role

Make decisions to refer for further investigations or more specialised treatment where required

Support self management, monitor effects of treatment

Liaise with Lymphoedema Specialist and refer on as required for advice and specialist treatment during periods of exacerbation/poor control of condition but taking lead role if condition is stable with optimum self management according to agreed pathway

Ensure a multidisciplinary approach to maximise potential for self-care, e.g. weight management, social care, housing

Recognised course - blended face to face, online and workbased with recognised qualification

Table 5

Key outcomes to be achieved

  • Initiate appropriate investigations to exclude or confirm diagnosis of lymphoedema when necessary and to identify other co-existing morbidities
  • Ensure involvement of Lymphoedema Practitioner if there is evidence of lymphatic insufficiency
  • Initiate prompt treatment for cellulitis

Members of the care team responsible

Suggested competencies

Educational requirement in relation to lymphoedema

General Practitioners and Consultants in specialties associated with higher prevalence of lymphoedema, e.g. oncology, vascular medicine, dermatology, cardiology, care of older people

Recognise early signs of possible lymphoedema

Refer for appropriate assessment or investigations and advice from specialist practitioners when appropriate

Follow BLS guidelines or locally adapted protocols for treatment and prevention of cellulitis

Awareness of clinical features and progression of lymphoedema

Awareness of cellulitis treatment and prevention protocols

Awareness of principles of treatment of lymphoedema and how to access treatments

Information integrated into key points of UG curriculum. Short term need for awareness raising, possibly through online module

Table 6

Key outcomes to be achieved

Equitable provision of lymphoedema services

Members of the care team responsible

Suggested competencies

Educational requirement in relation to lymphoedema

Lymphoedema Specialist Practitioner*

Manage all types of complex or unstable lymphoedema with degree of autonomy and responsibility for own caseload within an MDT context

Supervise and guide/advise other HCPs and HCSWs

Selected services/practitioners should accept referrals for treatment of children or act as consultants to paediatric services

Degree level education plus specific qualification in specialist lymphoedema management

Opportunity to gain clinical experience in treatment of children with lymphoedema

Lymphoedema Advanced Practitioner*

Manage and lead developments of lymphoedema service while having a key clinical and educational role

Support and act as a resource for lymphoedema practitioners and specialist practitioners

Highly developed clinical professional and theoretical knowledge to at least Master's level

Recognised qualification in Specialist/Advanced Lymphoedema management

Training in comprehensive clinical examination skills

Clinical Leads/Case Managers in MDT

Ensure lymphoedema practitioners are involved/consulted as part of an MDT approach to managing care for people with complex lymphoedema or lymphoedema alongside other co-morbidities.

Awareness of the principles of lymphoedema treatment and risk reduction strategies

Online education module

*Most likely to be registered nurse, physiotherapist or occupational therapist

Contact

Email: Diane Dempster

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