Brain and central nervous system cancer: clinical quality performance indicators - engagement document
Guidance to our consultation on brain and central nervous system cancer clinical quality performance indicators which is taking place in January and February 2024.
Appendix 1: QPI Development Process
The preparatory work involved the development of a structured briefing paper by Healthcare Improvement Scotland. This paper took account of existing, high quality, clinical guidance and provided a basis for the development of QPIs.
The scope for development of Brain/CNS Cancer QPIs and a search narrative were defined and agreed by the Brain/CNS Cancer QPI Development Group. The table below shows the final search criteria used in the literature search.
Brain/CNS Cancer Search Criteria
Inclusion
Topics (population/patient): Brain and Central Nervous System (CNS) tumours, including:
- Glial tumours/gliomas (including: astrocytomas, oligodendrogliomas, ependymomas, medulloblastomas)
- Spinal cord tumours
- Pineal tumours
- Intracranial germ cell tumours
- Neuronal tumours
Topics (intervention):
- Diagnosis
- Staging
- Surgical management of disease
- Non-surgical management of disease (chemotherapy, radiotherapy, biological/targeted therapies; palliation e.g. management of seizures)
Adults only
Date: 2005 to present day
Language: English only
Exclusion
Topics:
Related cancers, including:
- Metastatic brain/CNS tumours
- Meningiomas
- Cranial nerve tumours
- Pituitary tumours
- Primary CNS lymphomas
Communication/information, end of life care, pain management, prevention, and screening.
Primary care diagnosis and referral.
Guidelines for the conduct of clinical trials (topic for generic QPI development).
A systematic search was carried out by Healthcare Improvement Scotland using selected websites and two primary medical databases to identify national and international guidelines.
Nine guidelines were appraised for quality using the AGREE II instrument28. This instrument assesses the methodological rigour and precision used when developing a guideline. Two of the guidelines were not recommended for use. Seven of the guidelines were recommended for use.
Indicator Development
The Brain/CNS Cancer QPI Development group defined evidence based, measurable indicators with a clear focus on improving the quality and outcome of care provided.
The Group developed QPIs using the clinical recommendations set out in the briefing paper as a base, ensuring all indicators met the following criteria:
- Overall importance – does the indicator address an area of clinical importance that would significantly impact on the quality and outcome of care delivered?
- Evidence based – is the indicator based on high quality clinical evidence?
- Measurability – is the indicator measurable i.e. are there explicit requirements for data measurement and are the required data items accessible and available for collection?
Engagement Process
A wide clinical and public engagement exercise was undertaken as part of development in May 2013, where the Brain/CNS Cancer QPIs, along with accompanying draft minimum core dataset and measurability specification, were made available on the Scottish Government website. During the engagement period clinical and management colleagues from across NHSScotland, patient affected by Brain/CNS cancer and the wider public were given the opportunity to influence the development of Brain/CNS QPIs.
Draft documentation was circulated widely to professional groups, health service staff, voluntary organisations and individuals for comment and feedback.
Following the engagement period all comments and responses received were reviewed by the Brain/CNS Cancer QPI Development Group and used to produce and refine the final indicators.
Brain/CNS Cancer QPI Development Group Membership (2013)
Name: Hilary Dobson
Designation: Regional Lead Cancer Clinician (Chair)
Cancer Network/Base: WoSCAN
Name: Anne Addison
Designation: Audit Facilitator
Cancer Network/Base: SCAN (Western General Hospital, Edinburgh)
Name: Syed A. Al-Haddad
Designation: Consultant Neurosurgeon
Cancer Network/Base: NOSCAN (Aberdeen Royal Infirmary)
Name: Anthony Chalmers
Designation: Clinical Oncologist
Cancer Network/Base: WoSCAN (Beatson West of Scotland Cancer Centre)
Name: Susan Chivers
Designation: Audit / MDT Coordinator
Cancer Network/Base: WoSCAN (Southern General Hospital, Glasgow)
Name: Laurence Dunn
Designation: Consultant Neurosurgeon
Cancer Network/Base: WoSCAN (Southern General Hospital, Glasgow)
Name: Sam Eljamel
Designation: Consultant Neurosurgeon
Cancer Network/Base: NOSCAN (Ninewells Hospital, Dundee)
Name: Kirsten Forbes
Designation: Consultant Radiologist
Cancer Network/Base: WoSCAN (Southern General Hospital, Glasgow)
Name: Helen Gooday
Designation: Consultant in Rehabilitation Medicine
Cancer Network/Base: NOSCAN (Woodend Hospital, Aberdeen)
Name: Robin Grant
Designation: Consultant Neurologist
Cancer Network/Base: SCAN (Western General Hospital, Edinburgh)
Name: James Ironside
Designation: Consultant Pathologist
Cancer Network/Base: SCAN (Western General Hospital, Edinburgh)
Name: Jennifer Lee
Designation: Audit Facilitator
Cancer Network/Base: NOSCAN (Ninewells Hospital, Dundee)
Name: Hannah Lord
Designation: Clinical Oncologist
Cancer Network/Base: NOSCAN (Ninewells Hospital, Dundee)
Name: Kelly Macdonald
Designation: Project Manager
Cancer Network/Base: WoSCAN
Name: James MacKenzie
Designation: Consultant Pathologist
Cancer Network/Base: NOSCAN (Aberdeen Royal Infirmary)
Name: Mairi MacKinnon
Designation: Clinical Nurse Specialist
Cancer Network/Base: WoSCAN (Beatson West of Scotland Cancer Centre)
Name: Shanne McNamara
Designation: Clinical Nurse Specialist
Cancer Network/Base: SCAN (Western General Hospital, Edinburgh)
Name: Carol Marshall
Designation: Project Manager
Cancer Network/Base: WoSCAN
Name: Alison Mitchell
Designation: Consultant in Palliative Medicine
Cancer Network/Base: WoSCAN (Beatson West of Scotland Cancer Centre)
Name: Brian Murray
Designation: Principle Information Development Manager
Cancer Network/Base: ISD
Name: Lynn Myles
Designation: Consultant Neurosurgeon
Cancer Network/Base: SCAN (Western General Hospital, Edinburgh)
Name: Chris Myres
Designation: Assistant Service Manager
Cancer Network/Base: SCAN (Western General Hospital, Edinburgh)
Name: Shona Olson
Designation: Consultant Radiologist
Cancer Network/Base: NOSCAN (Aberdeen Royal Infirmary)
Name: Sharon Peoples
Designation: Clinical Oncologist
Cancer Network/Base: SCAN (Western General Hospital, Edinburgh)
Name: Roy Rampling
Designation: SANON Clinical Lead
Cancer Network/Base: Scottish Adult Neuro-Oncology Network (SANON)
Name: Margaret Ritchie
Designation: Clinical Nurse Specialist
Cancer Network/Base: NOSCAN/ (Aberdeen Royal Infirmary)
Name: Ally Rooney
Designation: ST4 General Adult Psychiatry
Cancer Network/Base: SCAN (Royal Edinburgh Hospital, Edinburgh)
Name: Willie Stewart
Designation: Consultant Pathologist
Cancer Network/Base: WoSCAN (Southern General Hospital, Glasgow)
Name: David Summers
Designation: Consultant Radiologist
Cancer Network/Base: WoSCAN (Western General Hospital, Edinburgh)
Name: Evelyn Thomson
Designation: Regional Manager (Cancer)
Cancer Network/Base: WoSCAN
Name: Antonia Torgeson
Designation: Consultant Pathologist
Cancer Network/Base: SCAN (Royal Infirmary of Edinburgh, Edinburgh)
Name: Alena Vasianovich
Designation: Audit Facilitator
Cancer Network/Base: NOSCAN (Aberdeen Royal Infirmary)
NOSCAN - North of Scotland Cancer Network
SCAN - South East Scotland Cancer Network
WoSCAN - West of Scotland Cancer Network
Contact
Email: cancerpolicyteam@gov.scot
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