Cancer prehabilitation survey: findings report

Appendix C: Survey Questionnaire

About You

Q1. Please tell us about your:

Organisation

Place of Work

Job Title/Role

(all free text response options)

Q2. In which Health Board area is your place of work located?

(the 14 NHS Territorial Boards were listed as response options)

Prehabilitation

For the purposes of this survey, prehabilitation constitutes nutrition, physical activity/exercise and psychological support and the associated interventions delivered before definitive cancer treatment. Prehabilitation is proactive and personalised.

Q3. The 'Key Principles for Implementing Cancer Prehabilitation in Scotland' were published in April 2022.

How would you describe your awareness of the Key Principles?

Scale of 1-5: Not aware at all … Very aware

Q4. Are any cancer prehabilitation activities being offered in your local area (intervention before definitive treatment)?

Yes

No

Don't Know

Q5. To what extent do the following statements, reflecting the 'Key Principles for Implementing Cancer Prehabilitation in Scotland', underpin the delivery of prehabilitation activities in your local area?

Scale shown for all statements: 1 = strongly disagree 5 = strongly agree

+ Don't Know

• a. Prehabilitation activities start as early as possible and in advance of any cancer treatment
• b. Prehabilitation activities run in parallel with usual decision making processes so it does not have an adverse effect on cancer waiting times nor delay the start of treatment
• c. Prehabilitation activities are part of the rehabilitation continuum
• d. Prehabilitation activities are multi-modal including exercise/activity, nutrition and psychological support
• e. All patients are screened to determine the level of prehabilitation required (universal, targeted, specialist)
• f. Completion of prehabilitation screening should be recorded at cancer multidisciplinary team meetings alongside performance status
• g. All patients (receiving universal, targeted and specialist interventions) have a co-produced personalised prehabilitation care plan
• h. Validated tools are used for individualised assessment, care planning and outcomes measurement when patients are receiving targeted and specialist interventions

Q6. What staff or volunteers are involved in the delivery of your prehabilitation activities in your local area? Please select all that apply.

Nurse

Physiotherapist

Dietitian

Occupational Therapist

Clinical Psychologist

Counsellor

NHS Technical Instructor/Support worker

Fitness Instructor (Local Authority/Move More etc.)

Volunteer/Buddy/Peer Supporter

Other (please describe)

Don't Know

Q7. How closely do staff providing prehabilitation work within the care team and patient pathway (for instance, in a multidisciplinary team, or with prehab being a core part of a patient pathway/clinical management guideline)?

Free text response.

Q8. How are the following aspects of your prehabilitation activities monitored?

Q8a. Patient uptake (e.g. of patients referred, who joins the programme).

Q8b. Patient adherence (e.g. number of sessions attended by patients).

Q8c. Patient experience (e.g. patient feedback on the programme).

Free text response for each.

Q9. Are outcome measures being used to determine the effectiveness of your prehabilitation activities?

Yes

No

Don't know

Not applicable

Q9a. What outcome measures are being used?

Free text response.

Q10. Do your prehabilitation activities have:

Permanent funding

Temporary funding (If temporary, when is funding expected to cease?)

I don't know about funding

No funding

Other (please describe)

Q11. Do you personally refer people to prehabilitation activities?

Yes

No

I provide prehabilitation services

Q11a. How routinely would you refer people to prehabilitation activities?

Sliding Scale shown: 1 = never 5 = always

Q12. Is your service screening or triaging patients for perceived risk associated with: Nutrition?

Yes / No / Don't know

Q12a. Please describe how your service is doing this.

Free text response.

Q13. Is your service screening or triaging patients for perceived risk associated with: Physical activity/exercise?

Yes / No / Don't know

Q13a. Please describe how your service is doing this.

Free text response.

Q14. Is your service screening or triaging patients for perceived risk associated with: Psychological need?

Yes / No / Don't know

Q14a. Please describe how your service is doing this.

Free text response.

Q15. How have prehabilitation activities offered in your local area changed since the start of the COVID-19 pandemic? (You may wish to comment on activities that have decreased; plans to increase activities that were cancelled / scaled back; new activities started or planned; delivery mode e.g. digital/face-to-face).

Free text response.

Q16. Are there any plans to introduce or add to the prehabilitation activities in your local area?

Yes

No

Don't know

Q17. Please share your thoughts on how local pathways could be changed to support prehabilitation and optimise patients for treatment, including while they are on waiting lists (you may wish to comment on local barriers and/or enablers to prehabilitation, including leadership, staffing and multi-disciplinary team (MDT) involvement).

Free text response.

Q18. Do you have any other comments on the prehabilitation activities offered in your local area? You may wish to comment on referral/access route, inclusion/exclusion criteria including patient group and planned treatment type, screening and assessment process, location and duration of intervention.

Free text response.

Q19. How important do you think prehabilitation interventions are for people about to undergo cancer treatment?

Sliding Scale shown: 1 - not important at all; 5 - crucial

Rehabilitation

For the purposes of this survey, rehabilitation constitutes nutrition, physical activity/exercise and psychological support and the associated interventions delivered after definitive cancer treatment. Rehabilitation is proactive and personalised.

Q20. Are any cancer rehabilitation activities being offered in your local area (i.e. interventions following treatment)?

Yes

No

Don't know

Q21. Please describe the cancer rehabilitation activities offered in your local area. You may wish to comment on referral/access route, inclusion/exclusion criteria including patient group and treatment type, screening and assessment process, location and duration of intervention.

Free text response.

Q22. Do you personally refer people to rehabilitation activities?

Yes

No

I provide rehabilitation services

Q22a. How routinely would you refer people for rehabilitation activities?

Sliding Scale shown: 1 = never 5 = always

Q23. How important do you think rehabilitation interventions are for people who have undergone cancer treatment?

Sliding Scale shown: 1 - not important at all; 5 - crucial

Additional Comments

Q24. If you have any additional views or comments on prehabilitation or rehabilitation please use the field below to share them.

Free text response.