Care Home Data Review - Full Report

References

[i] Intermediate care is a collection of services that focus on prevention, rehabilitation, reablement and recovery. They can provide an alternative to going into hospital and provide extra support after a hospital stay. Source: Care Information Scotland

[ii] Bed based intermediate care is a time limited episode of care provided in dedicated care homes, housing with care or community hospitals. It can be provided as an alternative to admission to hospital (step-up) or to provide further assessment and rehabilitation, following discharge from hospital (step-down). Source: Scottish Government

[iii] Based on a headcount measure. Under a whole-time equivalent measure (using 37.5 hours for a working week), around 40,000 people work in care homes for adults. Source: Scottish Social Service Sector: Report on 2023 Workforce Data | Scottish Social Services Workforce Data (sssc.uk.com). The nursing estimate excludes agency nurses.

[iv] Scottish Centre for Administrative Data Research, Public Health Scotland. A guide to CHI-UPRN Residential Linkage (CURL) File.

[v] For example UK Policy Framework for health and social care research, Government Social Research Ethics Guidance, Social Research Association Research Ethics Guidance, Data Ethics Framework - GOV.UK (www.gov.uk), National Statistician’s Data Ethics Advisory Committee – UK Statistics Authority

1 Public Health Scotland (2024) Care home census for adults in Scotland - Statistics for 2014 to 2024 - Care home census for adults in Scotland - Publications - Public Health Scotland

2 Burton J (2022), Scottish COVID-19 Inquiry Research Briefing: Portfolio 3: The Provision of Health and Social Care Services

3 SSSC (2024) Scottish Social Service Sector: Report on 2023 Workforce Data | Scottish Social Services Workforce Data (sssc.uk.com)

4 Public Health Scotland (2024) Care home census for adults in Scotland - Statistics for 2014 to 2024 - Care home census for adults in Scotland - Publications - Public Health Scotland

5 DACHA Study

6 Jennifer Kirsty Burton and others, (2022), Developing a minimum data set for older adult care homes in the UK: exploring the concept and defining early core principles (thelancet.com), The Lancet Healthy Longevity, Volume 3, Issue 3, E186-E193

7 Scottish Care, (2021) Data-Report-Seeing-the-diamond-in-social-care-data.pdf (scottishcare.org)

8 Office for Statistics Regulation (2020) Adult social care statistics in Scotland

9 Scottish Government (2022) Mapping National Adult Social Care and Care Home Data Sources in Scotland

10 Jennifer Kirsty Burton and others, (2022) Understanding Pathways into Care homes using Data (UnPiCD study): a retrospective cohort study using national linked health and social care data, Age and Ageing, Volume 51, Issue 12, afac304,

11 Audit Scotland (2022), Social Care Briefing

12 Henderson D, Burton J, Lynch E, Rintoul J, Clark D, Bailey N, Data resource profile the Scottish social care survey (SCS) and the Scottish care home census (SCHC). International Journal of Population Data Science 2019; 4:24.

13 Burton, J.K. , Goodman, C., Guthrie, B., Gordon, A.L., Hanratty, B. and Quinn, T.J. (2020) Closing the UK care home data gap - methodological challenges and solutions. International Journal of Population Data Sciences, 5(4), 3.

14 Hanratty B, Burton JK, Goodman C, Gordon AL, Spilsbury K. (2020) Covid-19 and lack of linked datasets for care homes. BMJ. 369m2463

15 Social Care Working Group to the Scientific Advisory Group for Emergencies (SAGE) (2022) Consensus statement on the association between the discharge of patients from hospitals and COVID in care homes - GOV.UK (www.gov.uk)

16 Jennifer Kirsty Burton and others, Care-home outbreaks of COVID-19 in Scotland March to May 2020: National linked data cohort analysis, Age and Ageing, Volume 50, Issue 5, September 2021, Pages 1482–1492.

17 Burton, J.K. , Goodman, C., Guthrie, B., Gordon, A.L., Hanratty, B. and Quinn, T.J. (2020) Closing the UK care home data gap - methodological challenges and solutions. International Journal of Population Data Sciences, 5(4), 3, page 1.

18 Burton, J.K. , Goodman, C., Guthrie, B., Gordon, A.L., Hanratty, B. and Quinn, T.J. (2020) Closing the UK care home data gap - methodological challenges and solutions. International Journal of Population Data Sciences, 5(4), 3, page 1.

19 Audit Scotland (2022), Social Care Briefing

20 Office for Statistics Regulation (2020) Adult social care statistics in Scotland

21 www.equalityevidence.scot

22 Diamond, Professor Sir Ian. Ensuring everyone is counted in UK data and evidence (UK Statistics Authority Blog, September 2021)

23 UK Statistics Authority (2021) Inclusive Data Taskforce recommendations report: Leaving no one behind – How can we be more inclusive in our data?

24 Henderson D, Burton J, Lynch E, Rintoul J, Clark D, Bailey N, Data resource profile the Scottish social care survey (SCS) and the Scottish care home census (SCHC). International Journal of Population Data Science 2019; 4:24. Page 6 and 8.

25 Scottish Government (2022) Mapping National Adult Social Care and Care Home Data Sources in Scotland

26 Burton, J.K. , Goodman, C., Guthrie, B., Gordon, A.L., Hanratty, B. and Quinn, T.J. (2020) Closing the UK care home data gap - methodological challenges and solutions. International Journal of Population Data Sciences, 5(4), 3.

27 Jennifer Kirsty Burton and others, (2022) Understanding Pathways into Care homes using Data (UnPiCD study): a retrospective cohort study using national linked health and social care data, Age and Ageing, Volume 51, Issue 12, afac304,

28 Hanratty B, Burton JK, Goodman C, Gordon AL, Spilsbury K. (2020) Covid-19 and lack of linked datasets for care homes. BMJ. 369m2463 page 1

29 Johnston L, Hockley J, Henderson DAG, Shenkin SD. (2020) The Development of a Care Home Data Platform in Scotland: Insights from the Care Home Innovation Partnership, Lothian. medRxiv .08.17.20176503

30 Scottish Government (2023) Care Home Data Review: workshop summary

31 Scottish Government (2023) Care Home Data Review: workshop summary, page 10.

32 Scottish Government (2023) Care Home Data Review: workshop summary

33 Scottish Government (2023) Care Home Data Review: workshop summary

34 Office for Statistics Regulation (2020) Adult social care statistics in Scotland page 16.

35 Scottish Government (2023) Care Home Data Review: workshop summary, page 17.

36 Scottish Government (2023) Care Home Data Review: workshop summary and one to one discussions

37 Office for Statistics Regulation (2020) Adult social care statistics in Scotland

38 Burton, J.K. , Goodman, C., Guthrie, B., Gordon, A.L., Hanratty, B. and Quinn, T.J. (2020) Closing the UK care home data gap - methodological challenges and solutions. International Journal of Population Data Sciences, 5(4), 3.

39 Johnson L, McLean I, Shenkin SD (2023) The GEARED UP Project (napier.ac.uk)

40 Johnston L, Koikkalainen H, Anderson L, Lapok P, Lawson A, Shenkin SD. (2022) Foundation Level Barriers to the Widespread Adoption of Digital Solutions by Care Homes: Insights from Three Scottish Studies. Int J Environ Res Public Health, 19(12):7407.

41 Burton, J.K. , Goodman, C., Guthrie, B., Gordon, A.L., Hanratty, B. and Quinn, T.J. (2020) Closing the UK care home data gap - methodological challenges and solutions. International Journal of Population Data Sciences, 5(4), 3.

42 Burton, J.K. , Goodman, C., Guthrie, B., Gordon, A.L., Hanratty, B. and Quinn, T.J. (2020) Closing the UK care home data gap - methodological challenges and solutions. International Journal of Population Data Sciences, 5(4), 3.

43 Johnson L, McLean I, Shenkin SD (2023) The GEARED UP Project (napier.ac.uk)

44 Johnston L, Koikkalainen H, Anderson L, Lapok P, Lawson A, Shenkin SD. (2022) Foundation Level Barriers to the Widespread Adoption of Digital Solutions by Care Homes: Insights from Three Scottish Studies. Int J Environ Res Public Health, 19(12):7407.

45 Scottish Government and COSLA (2023) Greater access, better insight, improved outcomes: a strategy for data-driven care in the digital age

46 Johnson L, McLean I, Shenkin SD (2023) The GEARED UP Project (napier.ac.uk)

47 Scottish Government (2023) Health and social care: data strategy - gov.scot (www.gov.scot)

48 NHS Health Research Authority (2021) Governance arrangements for research ethics committees: 2020 edition

49 Johnson L, McLean I, Shenkin SD (2023) The GEARED UP Project (napier.ac.uk)

50 Johnson L, McLean I, Shenkin SD (2023) The GEARED UP Project (napier.ac.uk) page 10.

51 NHS Health Research Authority (2020) UK Policy Framework for health and social care research

52 Johnston L, Shenkin Susan D. (2022) Digital and Data Readiness of Care Homes for Older People in South East Scotland, page 8.

53 Office for Statistics Regulation (2020) Adult social care statistics in Scotland