Charter for Safe Havens in Scotland: Handling Unconsented Data from National Health Service Patient Records to Support Research and Statistics.
The Charter for Safe Havens sets out the agreed principles and standards for the routine operation of Safe Havens in Scotland where data from electronic records can be used to support research when it is not practicable to obtain individual patient consent while protecting patient identity and privacy.
Further Reading
R Thomas and M Walport (2008) Data Sharing Review
http://webarchive.nationalarchives.gov.uk/+/http:/www.justice.gov.uk/docs/data-sharing-review.pdf
Information to share or not to share? Information Governance Review (2013)
https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/192572/2900774_InfoGovernance_accv2.pdf
Anonymisation Code of Practice
http://ico.org.uk/for_organisations/data_protection/topic_guides/anonymisation
Data sharing code of practice
https://ico.org.uk/media/about-the-ico/consultations/2069/data_sharing_code_of_practice.pdf
Data Sharing: Legal Guidance for the Public Sector
http://www.scotland.gov.uk/Publications/2004/10/20158/45784
Identifying 'data controllers' and 'data processors' Data Protection Act 1998
http://ico.org.uk/~/media/documents/library/Data_Protection/Detailed_specialist_guides/data-controllers-and-data-processors-dp-guidance.pdf
Identity Management and Privacy Principles
http://www.scotland.gov.uk/Topics/Government/PublicServiceReform/efficientgovernment/privacyprinciples
Joined up data for better decisions: Guiding Principles for Data Linkage
http://www.scotland.gov.uk/Publications/2012/11/9015
Christie Commission on the Future Delivery of Public services
http://www.scotland.gov.uk/Resource/Doc/352649/0118638.pdf
Contact
Email: Pamela Linksted
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