Digital Health and Care Data Strategy Working Group minutes: March 2022

Attendees and apologies

Working group members in attendance

• Alan Aitken (AA)
• Ryan Anderson (RA)
• Elena Beratarbide (EB)
• Doreen Grove (DG)
• Imme Jones (IJ)
• Penni Rocks (PR)
• Zoe Rohde (ZR)
• Carol Sinclair (CS)
• Nel Whiting (NW)
• Gemma Wilson (GW)

Secretariat

• Simon Crawley (SC)

Apologies

• Head of HSCA
• Albert King (AK)
• Adam Lang (AL)
• Alistair Hodgson (AH)

Items and actions

Welcome and apologies observed

The Chair welcomed everyone to the meeting.

Apologies were noted from Adam Lang, Head of HSCA, Albert King and Alistair Hodgson.

Data board update

RA provided an overview of the Health and Social Care Data Boards initial meeting which was held on Tuesday 8 March.

The group noted:

• IJ provided an overview of the data strategy and confirmed key milestones for the Strategy. Data board members were content with how the strategy is progressing
• RA gave an overview of governance landscape most relevant to the board
• The Data Board discussed the terms of reference (ToR)
• data board minutes will be published on the government website
• schedule of data board meetings will align with key milestones for the data strategy

The group agreed:

• feedback from the data board regarding developments of the data strategy should be cascaded directly to the working group

Data strategy update

RA gave an update of the data strategy.

• RA Met with Debbie Sagar (Health and Social Care Analytics) regarding the consultation for the Data Strategy. Debbie will be advising on how the consultation questions should be framed for the intended audience, and providing input into developing the consultation document
• GW is in the process of summarising the information gathered from all previous workshops and engagement sessions into a single document. This document will focus on eight overarching themes of:
  • communication and engagement
  • data standards and interoperability
  • technology
  • data access
  • information governance and security
  • ethical approach to data
  • talent and culture
  • digital exclusion

The group agreed:

• the consultation should be influenced by the document produced from these workshops and engagement sessions to ensure we capture the voices of Scotland’s citizens, professionals and researchers

Next steps:

• GW to distribute finalised document to the working group

Actions: GW

Engagement update

NW gave an overview of the engagement plan advising the final engagement session was due to take place on 9th March 2022 with Datalab and this would complete the first round of engagement workshops.

The group noted:

• the information from the first round of engagement will be summarised into a document before proceeding into the second round with citizens, professional and researches
• three workshops have been arranged with a range of stakeholders, in addition there will be separate workshops with People Led Policy Panel, The Scottish Commission for People with learning disabilities (SCLD) and unpaid carers in Scotland and Carers in Scotland (CIS). This will ensure that we are aware of and take into account the views and needs of these groups
• second round of engagement will take place during March/April for the consultation in the Spring 2022

The group agreed:

• a further update on engagement would be provided at next meeting

Draft consultation

IJ provided an update on the draft consultation highlighting ‘the vision and ambitions’ of the consultation. Concentrating on the three main objectives of transparency, security and interoperability.

The group noted:

• the vision and ambition should set out what we want to achieve and what this means for citizens and professionals within the Health and Social Care Sector
• the consultation should set out how we will achieve the vision and ambition and will be used to feed in to the actions that are set out within the delivery plan
• ensuring the questions in the consultation are aimed at the appropriate audience and can capture peoples voices who have both a citizen and a professional view

The group agreed:

• to provide feedback on the consultation questions
• to provide suggestions on examples that can be used as case studies and how we can generate greater awareness of the consultation and what it is trying to achieve
• IJ to input suggestions by the working group into the draft consultation and update when appropriate to do so

Actions: IJ

AOB

Next Working Group meeting Wednesday 13 March 2022 at 11:30.