Disabled young people: National Transitions to Adulthood Strategy Strategic Working Group minutes - April 2024

Attendees and apologies

• Anne Wilson, National Managed Clinical Network – Children with Exceptional Healthcare Needs 
• Beth Kirby, Scottish Government
• Claire Bannister, Universities Scotland 
• Claire Vekic, Colleges Scotland
• Eilidh Fulton, Scottish Funding Council
• Iain Wilson, ILF Scotland
• Dr Edwin Jesudason, NHS Lothian – representing adult health
• Fergus McMillan, Skills Development Scotland
• Jenny Miller, Promoting a More Inclusive Society (PAMIS)
• John Urquhart, COSLA
• Julie Cuzen, Scottish Transitions Forum Parent Carer Network
• Marianne Scobie, Glasgow Disability Alliance
• Megan O’Hara-Knight, Glasgow Disability Alliance
• Michelle Wilson, Children’s Health Scotland
• Rachel Bell, Scottish Government
• Sarah Lawson, Scottish Government
• Scott Richardson-Read, Association for Real Change (ARC) Scotland
• Tracey Francis, Association for Real Change (ARC) Scotland
• Una McFadyen, National Managed Clinical Network – Children with Exceptional Healthcare Needs

Apologies 

• Sara Hampson, Scottish Government
• Frances Foreman, Education Scotland
• Gemma Richardson, Royal College of Paediatrics and Child Health   
• Laura Kerr, Social Work Scotland 
• Lucy Johnson, Children in Scotland

Items and actions

Welcome and review of previous meeting minutes and actions

RB welcomed attendees, outlined the previous meeting’s actions, and shared today’s meeting agenda and outcomes:

• Agree revised outcomes, based on feedback from the last meeting
• Discuss potential actions for each priority

Group updates

RB outlined plans for wider engagement between May and July 2024, and invited group updates which included: 

• MS and MO-K noted work with disabled young people in relation to the National Care Service
• JM referenced a drama and art project around transitions and will share the outputs from this
• UM recently presented at ARC Scotland’s learning exchange on health transitions. UM noted the importance of careers advice for disabled young people taking account of their health needs

Outcomes – group discussion

RB shared revised outcomes under each priority, based on the groups’ feedback at the last meeting. Further reflections on the revisions included:

• Consulting GIRFEC colleagues on the use of ‘person led’ as opposed to ‘person centred’
• The capacity of the young person for decision making
• Greater reference to the United Nation Convention on the Rights of the Child within outcomes
• Suggestions on alternative language to ‘claim’ in relation to rights e.g. upholding, exercising and realising

Possible actions – breakout rooms 

The group split into two breakout rooms to discuss what works well and what could be better in relation to each of the priorities for the strategy. Suggestions included: 

• Current mechanisms for delivering person-centred planning
• Compass
• Transitions co-ordinators
• Transitions work happening in hospices
• PAMIS’ digital passports

Next steps, any other business and close

RB noted the next meeting date will be 25 June 2024 and closed the meeting.

Actions

• Members to share any engagement opportunities to DCYPtransitions@gov.scot
• SRR to share ARC’s insights into data collection with officials
• JM to share outputs from art and drama project with officials