Publication - Strategy/plan
Donation and transplantation plan for Scotland 2013-2020
Our national plan setting out key recommendations around organ and tissue donation and transplantation to improve Scotland's performance.
Annex A Summary of Recommendations
| Priority 1: Increasing the number of people in Scotland who have made their wishes about donation known | |
|---|---|
| 1a | The Scottish Government should continue to fund and deliver high-profile organ donation awareness-raising campaigns. |
| 1b | The Scottish Government should ensure that proportionate targeted awareness-raising and education work continues with BAME and other relevant communities in Scotland, linking up to similar work across the UK as appropriate. |
| 2 | The Scottish Government should await evaluation of the move to 'opt-out' in Wales before making any decision about the introduction of opt-out in Scotland. |
| 3 | The Scottish Government should ensure that the schools pack continues to be maintained and updated as necessary, and consideration should be given to providing the pack in other accessible formats, such as in e-book format. |
| Priority 2: Increasing the availability of organs | |
| 4a | The Scottish Transplant Group should work with NHS Boards to develop tangible approaches to minimising and eliminating missed referrals, working in partnership with the Scottish Government, NHSBT and others. |
| 4b | The Scottish Government should publish data on an annual basis detailing the number and type (DBD and DCD) of potential referrals that have been missed and in which NHS Board areas, to support NHS Boards in identifying and rectifying potential barriers to referral. Such data, which could also include tissue donation data should be published in the annual donation report card (see Recommendation 18). |
| 5 | NHS Boards and clinicians should ensure that all discussions with family members about the potential for donation involves a SNOD. The Scottish Transplant Group should monitor data on the rate of family refusals and report annually to Scottish Ministers. |
| 6 | The Scottish Transplant Group should continue to work closely with the Crown Office and the Scottish Fatalities Investigation Unit (SFIU) to ensure that Fiscals have the information they need to make informed decisions about donation. Such work should involve annual training days involving the criminal justice and transplant communities. |
| 7 | The Scottish Transplant Group and the Scottish Government should continue to support the DCD category II pilot in Edinburgh. That pilot should be fully evaluated and lessons learned and disseminated across the UK. If the pilot is successful consideration should be given to operating similar schemes in other parts of Scotland - although such schemes may only be viable in Edinburgh and Glasgow, where there is rapid access to large emergency departments and a local organ retrieval team. |
| 8 | The Scottish Government should ask National Service Division of NSS to look at the potential risks and benefits of moving to national commissioning of kidney transplantation in Scotland. |
| 9 | The Scottish Government should undertake to review and update HDL2004/51, working with HM Revenue & Customs and NHSBT as necessary. |
| 10 | The Scottish Government and the Scottish Transplant Group should look at options to ensure that individuals who live in remote parts of Scotland are able to donate if they wish to do so. Consideration should be given to transportation arrangements to enable potential donors to be moved to hospitals which can facilitate donation if necessary and appropriate. |
| Priority 3: Making every donation count | |
| 11 | The Scottish Transplant Group and the Scottish Government should work with NHSBT and the other UK Departments to encourage development and introduction of a system of simultaneous electronic offering. |
| 12 | The Scottish Transplant Group should review the experience from the North East of England Region, and consider rolling out a similar system within Scotland, to streamline the donation process. |
| 13 | The Scottish Government and the Scottish Transplant Group should work with NHSBT to ensure that review of the Potential Donor Audit (PDA) is prioritised, and should continue to support the Scottish Intensive Care Society and College of Emergency Medicine representation on the NHSBT Potential Donor Audit sub-group. |
| 14 | The Scottish Government and the Scottish Transplant Group should work with NHSBT and others to provide a national gathering on alternate years to support donor families. |
| 15 | The Scottish Transplant Group should continue to monitor aftercare requirements across Scotland, as well as relevant developments in evidence and research, to ensure transplant recipients receive the support that they need. Consideration should be given to working with primary care and other parts of the NHS to raise awareness on longer-term post-transplant management. |
| Priority 4: Ensuring all parts of NHSScotland are knowledgeable about and support donation and transplantation | |
| 16 | The Scottish Government, working with the Scottish Transplant Group, should undertake to develop such advice for clinicians, and address any legal issues there may be. A full public consultation should be undertaken prior to any advice being issued, or prior to any legislative change. |
| 17 | The Scottish Government and the Scottish Transplant Group should review local Organ Donation Committees and the work of Clinical Leads for Organ Donation, to determine whether or not the current infrastructure is effective, and to determine which approaches can best embed organ donation as core business for all. |
| 18 | The Scottish Government should publish an annual report card on four or five key national measures on organ donation. |
| 19 | The Scottish Government, working with the Scottish Transplant Group, should seek to pilot in one hospital a 'whole hospital' approach to organ and tissue donation. That pilot should be fully evaluated and all lessons learned. |
| Priority 5: Ensuring the public in Scotland is informed and engaged about donation and transplantation | |
| 20 | The Scottish Government should undertake a full public consultation on potential approaches to increasing organ donation in Scotland. |
| 21 | The Scottish Government should undertake work to establish a new national memorial to organ and tissue donors. Such a memorial should be easily accessible. |
Contact
Email: Pamela Niven
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