Health and social care - data strategy: consultation - easy read

Part 1 – the people of Scotland

Health and social care data could be things like results from a blood test, how it has been decided what your illness is, or information communicated to a health and social care service.

1. What does 'your health and social care data' mean to you?

Type your answer here:

2a. Think about accessing your own health and social care data.

What would be the most important data for you to have access to and more control over?

Type your answer here:

2b. If a person cannot access or understand their own data would it be right to give access to a guardian, carer or a person they trust?

• Yes
• ? I am not sure
• No

If you answered 'yes', what would make sure this is done safely? Type your answer here:

Ethical means knowing the rules about what is right and wrong.

It means for example treating people the way you would like to be treated.

3a. What information would make it clear how your data is used in an ethical way?

Type your answer here:

3b. How important is it to collect data so health and social care services know if they are giving a good service to people with protected characteristics?

• very important
• important
• ? I am not sure
• not important

Think about health and social care staff seeing and using your health and social care data.

3c. What more could be done to make sure you trust how they would do this?

Type your answer here:

4a. Are there any times when you would not be comfortable with your data being shared?

Type your answer here:

4b. The law says your health and social care data can be shared for direct care - ways that prevent, look into and treat your illness.

Would you be comfortable with your data being shared with health and social care organisations for other reasons?

• Yes
• ? I am not sure
• No

Please tell us more. Type your answer here:

More people are using devices to track their own health.

5a. Do you collect your own health data, for example measuring activity, sleep patterns or heart rate through a mobile phone or watch?

• yes
• no

5b. If you answered 'yes' would you want to share this data with health and social care professionals, and for them to use it to make services better?

• yes
• no