Endometriosis: lived experience insight report 2023
Details the findings from a series of endometriosis lived experience interviews. It seeks to raise awareness of endometriosis by providing an insight into experiences of accessing care and support across Scotland and how living with endometriosis can impact a person’s quality of life.
What Is Endometriosis And Why Is This Project Neceessary?
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What is endometriosis?
Endometriosis is a condition where tissue similar to the lining of the womb is found elsewhere in the body, and can be long-term. It's very common, affecting around 1 in 10 women and those assigned female at birth.[1,2] For some people, it can have a significant impact on their physical health, emotional wellbeing, and daily routine.
Symptoms
The symptoms of endometriosis can vary from person to person but it is typically identified through significant pain which negatively impacts day-to-day life. The pain can range from lower abdomen to lower back or legs. Endometriosis can also be seen as symptoms such as bloating and having pain when going to the toilet.
Diagnosis times
In a report from the All-Party Parliamentary Group on endometriosis it was noted that in the UK it took on average 8.5 years to receive a diagnosis of endometriosis.
Research has also shown that endometriosis costs the UK £8.2 billion per year in NHS costs and lost income.[3]
On average it takes 8.5 years to get a diagnosis of endometriosis in the UK.
Contact
Email: clinical_priorities@gov.scot
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