Endometriosis: lived experience insight report 2023

Details the findings from a series of endometriosis lived experience interviews. It seeks to raise awareness of endometriosis by providing an insight into experiences of accessing care and support across Scotland and how living with endometriosis can impact a person’s quality of life.


Change Ideas

Through the conversations we heard a number of different areas where people with endometriosis would like to see improvements.

We collated the data and drew together a set of changes which those with lived experience would like to see.

Accessing Care and Treatment

  • Increased use of technology such as Near Me, where appropriate
  • More non-medicinal management options offered as treatment
  • Ensure there are after surgery care plans that are patientcentred
  • Improved education for Health Care Professionals

Change Ideas from those with lived experience

Research

More investment into endometriosis research

Raising Awareness and Improving Information

Improved public awareness of the condition

  • More information and signposting in Primary Care
  • Improvements in medical education
  • Improvements to post-surgery consultations

Contact

Email: clinical_priorities@gov.scot

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