Coming Home implementation report: equality impact assessment

References

The following reports contributed to the majority of the evidence in compiling this EQIA:

Abbott & Howard (2007), What's love got to do with it?: Experiences of Lesbian, Gay, and bisexual people with intellectual disabilities in the united kingdom and views of the staff who support them. Sexuality Research and Social Policy volume 4. Available from: https://link.springer.com/article/10.1525/srsp.2007.4.1.27

Bradock 1999, cited in Dementia and People with Intellectual Disabilities British Psychological Society (2015) Available from: https://web.archive.org/web/20200511140211/https:/www.dsrf.org/media/REP77%20final%20proof%20(3).pdf

Bedard, et. al. (2010), Gender Identity and Sexual Orientation in People with Developmental Disabilities Sexuality and Disability volume 28. Available from: https://link.springer.com/article/10.1007/s11195-010-9155-7

Burns & Davies (2011), Same-Sex Relationships and Women with Intellectual Disabilities. Journal of Applied Research in Intellectual Disabilities. Available from: https://onlinelibrary.wiley.com/doi/full/10.1111/j.1468-3148.2010.00609.x

Dunn K, et al. (2020), Prevalence of mental health conditions, sensory impairments and physical disability in people with co-occurring intellectual disabilities and autism compared with other people: a cross-sectional total population study in Scotland. BMJ Open. Available from: https://bmjopen.bmj.com/content/bmjopen/10/4/e035280.full.pdf

Emerson, et al. (1997), Is there an increased prevalence of severe learning disabilities among british asians? Ethnicity and Health. Volume 2. Available From: https://www.tandfonline.com/doi/abs/10.1080/13557858.1997.9961840

Engender (2018), OUR BODIES, OUR RIGHTS: Identifying and removing barriers to disabled women's reproductive rights in Scotland. Available from: https://www.engender.org.uk/files/our-bodies,-our-rights-identifying-and-removing-barriers-to-disabled-womens-reproductive-rights-in-scoltand.pdf

Fraser of Allander Institute (2021), Evidence on Scotland's adult social care system for people with learning disabilities. Available from: https://fraserofallander.org/wp-content/uploads/2021/02/FAI-adult-social-care-learning-disabilities-Feb-21.pdf

Heslop et.al. (2015), Mortality in People with Intellectual Disabilities. Journal of Applied Research in Intellectual Disabilities. Available from: https://onlinelibrary.wiley.com/doi/epdf/10.1111/jar.12196

Jukes & Aldridge (2006), Person-centred practices: a therapeutic perspective ISBN: 9781856422994

Kinnear et. al (2020), Prevalence of physical conditions and multimorbidity in a cohort of adults with intellectual disabilities with and without Down syndrome: cross-sectional study. BMJ Open. Available from: https://bmjopen.bmj.com/content/8/2/e018292

McConnell & Llewellyn (2002), Stereotypes, Parents with Intellectual Disability and Child Protection. Journal of Social Welfare and Family Law volume 24. Available from: https://www.researchgate.net/profile/David-Mcconnell-5/publication/248929376_Stereotypes_Parents_with_Intellectual_Disability_and_Child_Protection/links/53d2b35a0cf228d363e950fc/Stereotypes-Parents-with-Intellectual-Disability-and-Child-Protection.pdf

McGrother, et.al (2002), Prevalence, morbidity and service need among South Asian and white adults with intellectual disability in Leicestershire, UK Journal of Intellectual Disability Research Available from: https://onlinelibrary.wiley.com/doi/full/10.1046/j.1365-2788.2002.00391.x

Mental Welfare Commission (2016), No Through Road: People with learning disabilities in hospital. Available from: https://www.mwcscot.org.uk/sites/default/files/2019-06/no_through_road.pdf

National Institute for Health and Care Excellence (2015), Mental health problems in people with learning disabilities. Available from: https://www.nice.org.uk/guidance/ng54/documents/mental-health-problems-in-people-with-learning-disabilities-draft-scope2

National Records of Scotland (2016), Scotland's Census 2011: People with a learning disability or developmental disorder. Available from: https://web.archive.org/web/20200218190903/https:/www.scotlandscensus.gov.uk/documents/analytical_reports/Scottish_Learning_Disabilities_Observatory-National_Summary_Part_2.pdf

NHS England (2019), The Learning Disability Mortality Review (LeDeR) Programme Annual Report 2018. Available from: https://www.bristol.ac.uk/media-library/sites/sps/leder/LeDeR_Annual_Report_2018%20published%20May%202019.pdf

Osugo & Cooper (2016), Interventions for adults with mild intellectual disabilities and mental ill-health: a systematic review Journal of Intellectual Disability Research. Available from: https://onlinelibrary.wiley.com/doi/abs/10.1111/jir.12285

Parkes et. al. (2009), Cross dressing and gender dysphoria in people with learning disabilities: a descriptive study. British Journal of Learning Disabilities. Available from: https://onlinelibrary.wiley.com/doi/epdf/10.1111/j.1468-3156.2008.00538.x

Public Health Scotland (2023), Learning disability inpatient activity: Financial Years 1997/98 - 2021/22 Available from: https://www.publichealthscotland.scot/publications/learning-disability-inpatient-activity/learning-disability-inpatient-activity-financial-years-199798-202122/

Public Health Scotland (2022), Delayed discharges in NHS Scotland: monthly figures for April 2022. Available from: https://www.publichealthscotland.scot/publications/delayed-discharges-in-nhsscotland-monthly/delayed-discharges-in-nhsscotland-monthly-figures-for-april-2022/#section-2

Ryan et. al (2014), Issues in caregiving for older people with intellectual disabilities and their ageing family carers: a review and commentary International Journal of Older People Nursing. Available from: https://onlinelibrary.wiley.com/doi/epdf/10.1111/opn.12021

Scottish Commission for people with a Learning Disability (2016), Supporting Parents with Learning Disabilities in Scotland: Challenges and Opportunities. Available from: https://www.scld.org.uk/wp-content/uploads/2016/11/Parenting-Report-FINAL-14.11.16.pdf

Scottish Commission for people with a Learning Disability (2019), Learning Disability Statistics Scotland 2019 Available from: https://www.scld.org.uk/wp-content/uploads/2019/12/Learning-Disability-Statistics-Scotland-2019.pdf

Scottish Commission for people with a Learning Disability (2020), Relationships Matter: Exploring people's experience of relationships, social isolation and loneliness. Available from: https://www.scld.org.uk/wp-content/uploads/2020/10/SCLD-Relationships-Report-Final.pdf

Scottish Government (2018), Coming Home: A Report on Out-of-Area Placements and Delayed Discharge for People with Learning Disabilities and Complex Needs. Available from: https://www.gov.scot/publications/coming-home-complex-care-needs-out-area-placements-report-2018/pages/1/

Scottish Government (2019), Children's Social Work Statistics Scotland, 2017-18. Available from: https://www.gov.scot/binaries/content/documents/govscot/publications/statistics/2019/03/childrens-social-work-statistics-2017-2018/documents/childrens-social-work-statistics-scotland-2017-18/childrens

Scottish Government (2021), Learning/intellectual disability and autism: transformation plan Available from: https://www.gov.scot/publications/learning-intellectual-disability-autism-towards-transformation/pages/1/

Scottish Government (2022), Coming Home Implementation: report from the working group on complex care and delayed discharge Available from: https://www.gov.scot/publications/coming-home-implementation-report-working-group-complex-care-delayed-discharge/

Scottish Government (2022), Inpatient census 2022: parts one and two. Available from: https://www.gov.scot/publications/inpatient-census-2022-part-1-mental-health-learning-disability-inpatient-bed-census-part-2-out-scotland-nhs-placements/

Scottish Government (2022), Health and Social Care Inpatient Census 2022 Available from: https://www.gov.scot/binaries/content/documents/govscot/publications/statistics/2022/12/inpatient-census-2022-part-1-mental-health-learning-disability-inpatient-bed-census-part-2-out-scotland-nhs-placements/documents/inpatient-census-2022/inpatient-census-2022/govscot%3Adocument/inpatient-census-2022.pdf

Scottish Learning Disabilities Observatory (2020), Life expectancy and causes of death of people with Down Syndrome: a systematic review Available from: https://www.sldo.ac.uk/our-research/determinants-of-health-and-inequalities-research/life-expectancy-and-mortality/life-expectancy-and-causes-of-death-of-people-with-down-syndrome/

Scottish Learning Disabilities Observatory (2022), Mental ill health and behaviours that challenge in adults with learning/intellectual disabilities: review of evidence. Available from: https://www.sldo.ac.uk/media/1970/mental-ill-health-report-final.pdf

Smith, et.al (2020), Rates and causes of mortality among children and young people with and without intellectual disabilities in Scotland: a record linkage cohort study of 796 190 school children. BMJ Open. Available from: https://bmjopen.bmj.com/content/10/8/e034077

Stoffelen, et al. (2013), Homosexuality among people with a mild intellectual disability: an explorative study on the lived experiences of homosexual people in the Netherlands with a mild intellectual disability Journal of Intellectual Disability Research volume 57. Available from: https://onlinelibrary.wiley.com/doi/10.1111/j.1365-2788.2011.01532.x

Tilley et. al. (2012), 'The silence is roaring': sterilization, reproductive rights and women with intellectual disabilities. Disability and Society volume 27. Available from: https://www.tandfonline.com/doi/pdf/10.1080/09687599.2012.654991?needAccess=true&

Truesdale, M. & Brown, M. (2017), People with Learning Disabilities in Scotland: 2017 Health Needs Assessment Update Report. NHS Health Scotland. Available from: https://www.healthscotland.scot/media/1690/people-with-learning-disabilities-in-scotland.pdf

Wiseman & Ferrie (2020), Reproductive (In)Justice and Inequality in the Lives of Women with Intellectual Disabilities in Scotland Available from: https://www.sjdr.se/articles/10.16993/sjdr.677/