A Health and Biomedical Informatics Research Strategy for Scotland

Footnotes

1. The Healthcare Quality Strategy for NHSScotland. The Scottish Government, May 2010 (http://www.scotland.gov.uk/Resource/Doc/311667/0098354.pdf)

2. Data Vision for Scotland. Data Management Board. The Scottish government. April 2014. (http://www.scotland.gov.uk/Resource/0044/00448438.pdf)

3. UK Data Forum (2012) UK Strategy for Data Resources for Social and Economic Research. A five-year plan to inform and guide the development and utilisation of data and related resources for social and economic research (http://www.esrc.ac.uk/_images/UKDF-strategy-data-resources_tcm8-26806.pdf)

4. Leon DA, Lawlor, D, Macintyre S eta l. Cohort Profile: The Aberdeen Children of the 1950s Study. International Journal of Epidemiology 2006; 35:549-552.

5. Deary IJ, Gow AJ, Pattie A et al. Cohort Profile: The Lothian Birth Cohorts of 1921 and 1936. International Journal of Epidemiology 2012;41:1576-1584

6. Deary IJ. Intelligence, health and death: the new field of cognitive epidemiology. Psychologist 2005;18:610-13

7. Batty GD, Deary IJ. Early life intelligence and adult health: emerging associations, plausible mechanisms, and public health significance. BMJ 2004;329:585-86.

8. Pell JP, Haw S, Cobbe SM, et al. Smoke-free legislation and hospitalizations for acute coronary syndrome. N Engl J Med 2008;359:482e91

9. Mackay DF, Haw S, Fischbacher C, et al. Smoke-free Legislation and Hospitalizations for Childhood Asthma. N Engl J Med 2010;363:1139-45.

10. Mackay DF, Nelson SM, Haw SJ, et al. (2012) Impact of Scotland's Smoke-Free Legislation on Pregnancy Complications: Retrospective Cohort Study. PLoS Med 9(3): e1001175. doi:10.1371/journal.pmed.1001175

11. McClements PL, Madurasinghe V, Thomson C, et al. Impact of the UK colorectal cancer screening pilot on incidence, stage distribution and mortality trends. Cancer Epidemiology 2012; 36(4): e232-42

12. Libby G, Brewster DH, McClements PL, et al. The impact of population based faecal occult blood test screening on colorectal cancer mortality: a matched cohort study. Br J Cancer 2012; 197(2): 255-9

13. Ford I, Murray H Packard C et al. Long-Term Follow-up of the West of Scotland Coronary Prevention Study, N Engl J Med 2007;357:1477-86

14. Barbone F, McMahon AD, Davey PG, et al. Association of road-traffic accidents with benzodiazepine use. The Lancet, 352 (1998) 1331-1336.

15. Libby G, Donnelly LA, Donnan PT, et al. New users of metformin are at low risk of incident cancer: a cohort study among people with type 2 diabetes. Diabetes Care 32 (2009) 1620-1625

16. A National GP Information Service. Proposal by the Primary Care Data Extraction Short Life Working Group. National Services Scotland. October 2012. See also: Delivering Quality in Primary Care: Progress Report, SGHD, 2012. (http://www.scotland.gov.uk/Resource/0039/00395413.pdf)

17. Thomas, R and Walport M, Data Sharing Review Report, 2008. http://systems.hscic.gov.uk/infogov/links/datasharingreview.pdf/view

18. The UK Administrative Data Research Network: Improving Access for Research and Policy. Report from the Administrative Data Taskforce. Economic and Social Research Council. December 2012. (http://www.esrc.ac.uk/_images/ADT-Improving-Access-for-Research-and-Policy_tcm8-24462.pdf)

19. The Information Governance Review. The Department of Health. April 2013. (https://www.gov.uk/government/news/health-secretary-to-strengthen-patient-privacy-on-confidential-data-use)

20. Boyle, P., Feijten, P., Feng, F., Hattersley, L., Huang, Z., Nolan, J. & Raab, G. (2009) Cohort Profile: The Scottish Longitudinal Study (SLS), International Journal of Epidemiology 38(2):385-392.

21. Electronic Data Research and Innovation Service (eDRIS). NHS National Services Scotland http://www.isdscotland.org/Products-and-Services/eDRIS/)

22. A Blueprint for Health Records Research in Scotland 2012 (http://www.scot-ship.ac.uk/sites/default/files/Reports/SHIP_BLUEPRINT_DOCUMENT_final_100712.pdf)

23. SHIP Guiding Principles and Best Practices. A document of the SHIP Information Governance Working Group (http://www.scot-ship.ac.uk/sites/default/files/Reports/Guiding_Principles_and_Best_Practices_221010.pdf.)

24. Joined-up Data for Better Decisions: A strategy for improving data access and analysis. Scottish Government. November 2012. (http://www.scotland.gov.uk/Resource/0040/00408151.pdf)

25. Joined-up data for better decisions: Guiding Principles for Data Linkage. The Scottish Government. November 2012. (http://www.scotland.gov.uk/Resource/0040/00407739.pdf)

26. Technical Consultation Paper on the Design of the Data Sharing and Linking Service (http://www.isdscotland.org/Products-and-Services/eDRIS/DSLS-consultation/DSLS-consultation-final-gd-060313.pdf)

27. Creating a Global Alliance to Enable Responsible Sharing of Genomic and Clinical Data http://www.ebi.ac.uk/sites/ebi.ac.uk/files/shared/images/News/Global_Alliance_White_Paper_3_June_2013.pdf

28. Council of Economic Advisers First Annual Chair's Report to the First Minister. Published 28th March 2013 (http://www.scotland.gov.uk/Resource/0041/00417465.pdf)

29. Academy of Medical Sciences (2010). A new pathway for the regulation and governance of health research (http://www.acmedsci.ac.uk/viewFile/publicationDownloads/newpathw.pdf)

30. Report on the Review of Patient-Identifiable Information. The Department of Health. 1997. (http://www.wales.nhs.uk/sites3/Documents/950/DH_4068404.pdf)

31. NRS Permissions Coordination Centre, R&D Permissions times in Scotland www.nhsresearchscotland.org.uk/237_RDpermissiontimesinScotland.html

32. Ford DV et al. The SAIL Databank: building a national architecture for e-health research and evaluation. BMC Health Services Research 2009, 9:157. (http://www.biomedcentral.com/1472-6963/9/157).

33. NHSScotland Caldicott Guardian's Principles into Practice - June 2012 v2 (http://www.knowledge.scot.nhs.uk/media/CLT/ResourceUploads/4014631/Caldicott%20Guardian%20Manual%20Scotland%20-%20June%202012.pdf)

34. Mackenzie IS, Wei L, Paterson KR, Macdonald TM. Cluster randomised trials of prescription medicines or prescribing policy- public and general practitioner opinions in Scotland. Br J Clin Pharmacol. 2012;74:354-61

35. Davidson S et al. Public acceptability of cross sectoral data linkage. Deliberative research findings. Edinburgh, Scottish Government, 2012. (www.scotland.gov.uk/socialresearch)

36. Davidson S et al. Public Acceptability of Data Sharing Between the Public, Private and Third Sectors for Research Purposes. Edinburgh, Scottish Government, 2013. (http://www.scotland.gov.uk/Publications/2013/10/1304)