National Care Service - information sharing to improve care support: regional forums - findings summary

How we ran the sessions

People who attended took part in group discussions and completed group exercises. A week before each event, we sent participants a summary of the questions we would be asking during the session.

On the day, we explained the discussion topics and provided written information to make sure the questions were clear.

During the sessions the topics we covered were:

• information that people may want to share
• information people need to feel informed
• information they feel should be shared about them
• how they would like that information to be shared

We provided an example for how the Care Record could look and the types of information it could capture.

We wanted to find out what people understood about their rights and responsibilities around personal information, and how we can better explain this to them and others.

We also collected feedback about how people felt the session itself went at the end and used this information to improve how other sessions were planned.

This was to make the regional forums as accessible as possible for participants and to make sure we were asking the right questions. Because of this, the discussion questions changed slightly between the first regional forum and the last regional forum.