Joined-up data for better decisions: Guiding Principles for Data Linkage
These principles accompany the associated publication 'Joined-up data for better decisions: A Strategy for Improving Data Access and Analysis'. The guiding principles are a key element of the Data Linkage Framework for Statistical and Research Purposes. They are designed to support data custodians, researchers and other stakeholders in taking decisions about safe and effective data linkage and sharing.
Further reading
Anonymisation Code of Practice
(ICO forthcoming publication, November 2012)
http://www.ico.gov.uk/for_organisations/data_protection.aspx
Consultation Report: A Scotland-wide Data Linkage Framework for Statistics and Research
(Scottish Government, 31 March 2012)
http://www.scotland.gov.uk/Publications/2012/08/3287/0
Consultation Responses: A Scotland-wide Data Linkage Framework for Statistics and Research
(Scottish Government, 13 June 2012)
http://www.scotland.gov.uk/Publications/2012/07/7705
Data sharing code of practice (ICO, 2011)
http://www.ico.gov.uk/for_organisations/data_protection/topic_guides/~/media/documents/library/Data_Protection/Detailed_specialist_guides/data_sharing_code_of_practice.ashx
Data Sharing: Legal Guidance for the Public Sector
(Scottish Government, 2004)
http://www.scotland.gov.uk/Publications/2004/10/20158/45784
Identifying 'data controllers' and 'data processors' Data Protection Act 1998 (ICO, 2012)
http://www.ico.gov.uk/for_organisations/guidance_index/~/media/documents/library/Data_Protection/Detailed_specialist_guides/data_controllers_and_data_processors.ashx
Identity Management and Privacy Principles
(Scottish Government, 2011)
http://www.scotland.gov.uk/Topics/Government/PublicServiceReform/efficientgovernment/privacyprinciples
Information Governance Of Use Of Health-Related Data In Medical Research In Scotland: Current Practices And Future Scenarios
(G Laurie and N Sethi, SHIP Core Programme No.2, Working Paper No.1, 2011)
http://www.scot-ship.ac.uk/sites/default/files/Reports/Working_Paper_1.pdf
Information Governance of Use of Health-Related Data in Medical Research in Scotland: Towards a Good Governance Framework
(G Laurie and N Sethi, SHIP Core Programme No.2, Working Paper No.2, 2012)
http://www.scot-ship.ac.uk/sites/default/files/Reports/Working_Paper_2.pdf
Government Security Policy Framework (Cabinet Office, 2011)
http://www.cabinetoffice.gov.uk/sites/default/files/resources/hmgsecurity-policy_0_0.pdf
National Statistician's Guidance: Confidentiality of Official Statistics
(Government Statistical Service, 2009)
http://www.statisticsauthority.gov.uk/national-statistician/nsreports--reviews-and-guidance/national-statistician-s-guidance/confidentiality-of-official-statistics.pdf
Privacy Impact Assessment Handbook (ICO, June 2009)
http://www.ico.gov.uk/upload/documents/pia_handbook_html_v2/index.html
Public acceptability of cross-sectoral data linkage: Deliberative research findings (31 August 2012)
(Ipsos MORI with Sarah Cunningham-Burley and Claudia Pagliari on behalf of Scottish Government, 31 August 2012)
http://www.scotland.gov.uk/Publications/2012/08/9455/0
Scotland-wide Data Linkage Framework for Statistics and Research: Consultation Paper on the Aims and Guiding Principles
(Scottish Government, 26 March 2012)
http://www.scotland.gov.uk/Publications/2012/03/3260/0
SHIP Guiding Principles and Best Practices
(Scottish Health Informatics Programme, 2010)
http://www.scot-ship.ac.uk/sites/default/files/Reports/Guiding_Principles_and_Best_Practices_221010.pdf
Transparent Government, Not Transparent Citizens: A Report on Privacy and Transparency for the Cabinet Office.
(Cabinet Office 2011)
http://www.cabinetoffice.gov.uk/sites/default/files/resources/transparency-and-privacy-review-annex-b.pdf
Contact
Email: Kirsty MacLean
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