Mapping National Adult Social Care and Care Home Data Sources in Scotland: Baseline understanding & future potential: September 2022

Useful Links & References

This section presents information and links to documents detailing progression, development and decision making for national adult care home and all adult social care collections.

Reference documents

Office for Statistics Regulation. Adult social care statistics in Scotland. February 2020. Available from: https://osr.statisticsauthority.gov.uk/wp-content/uploads/2020/07/ASC_Scotland-1.pdf

Office for Statistics Regulation. Adult Social Care Statistics: a way forward for Great Britain. March 2020. Available from: https://osr.statisticsauthority.gov.uk/wp-content/uploads/2020/07/ASCR_GB_summary-1.pdf

Public Health Scotland Strategic Plan 2020-23. https://www.publichealthscotland.scot/downloads/public-health-scotland-strategic-plan-2020-23/

Scottish Government. Joined-up data for better decisions. Guiding Principles for Data Linkage. 2012. Available from: https://www.gov.scot/binaries/content/documents/govscot/publications/advice-and-guidance/2012/11/joined-up-data-better-decisions-guiding-principles-data-linkage/documents/joined-up-data-better-decisions-guiding-principles-data-linkage/joined-up-data-better-decisions-guiding-principles-data-linkage/govscot%3Adocument/00407739.pdf

Scottish Government. A Health and Biomedical Informatics Research Strategy for Scotland. 2015. Available from: https://www.gov.scot/binaries/content/documents/govscot/publications/strategy-plan/2015/04/health-biomedical-informatics-research-strategy-scotland/documents/health-biomedical-informatics-research-strategy-scotland-enhancing-research-capability-health-informatics-patient-public-benefit-2015-2020/health-biomedical-informatics-research-strategy-scotland-enhancing-research-capability-health-informatics-patient-public-benefit-2015-2020/govscot%3Adocument/00475145.pdf

Scottish Government. Adult social care: independent review. 2021. Available from: https://www.gov.scot/publications/independent-review-adult-social-care-scotland/

Scottish Government. National Care Service: 10 data and evidence papers. 2022. Available from: https://www.gov.scot/collections/national-care-service/

Web links

Early Career Researchers Using Scottish Administrative Data. eCRUSADers. https://ecrusad.co.uk/

CENTRIC Administrative Data Training. https://centrictraining.org/

NHS National Services Scotland, Information Services Division Scotland, Knight P. The changing functional needs and dependency of people living in care homes. https://www.isdscotland.org/Health-Topics/Health-and-Social-Community-Care/Publications/2017-02-28/2017-02-28-The-changing-functional-needs-and-dependency-of-people-living-in-care-homes-Report.pdf

Public Health Scotland. Care Homes. Care Home Census. https://www.isdscotland.org/Health-Topics/Health-and-Social-Community-Care/Care-Homes/Census/

Public Health Scotland. Data and Intelligence. eDRIS (electronic Data Research and Innovation Service). https://www.isdscotland.org/Products-and-Services/EDRIS/

Public Health Scotland. Measuring Function/Dependency. Older People in the Community. Indicator of Relative Need (ioRN). https://www.isdscotland.org/Health-Topics/Health-and-Social-Community-Care/Dependency-Relative-Needs/In-the-Community/

Public Health Scotland. Social and community care. https://beta.isdscotland.org/find-publications-and-data/health-and-social-care/social-and-community-care/

Public Health Scotland. Publications. https://publichealthscotland.scot/publications/?q=&fq=topics%3ASocial+and+community+care%23

Research Data Scotland. https://www.researchdata.scot/

Scottish Centre for Administrative Data Research. https://www.scadr.ac.uk/

Scottish Informatics and Linkage Collaboration. http://www.datalinkagescotland.co.uk/

Publications contextualising national data sources and challenges

Alvarez-Madrazo A, McTaggart S, Nangle C, Nicholson E, Bennie M. Data resource profile: The Scottish National Prescribing Information System (PIS). International Journal of Epidemiology. 2016;45(3):714-15f. https://doi.org/10.1093/ije/dyw060

Burton JK, Goodman C, Guthrie B, Gordon AL, Hanratty B, Quinn TJ. Closing the UK care home data gap – methodological challenges and solutions. International Journal of Population Data Science. 2020;5(4):1391. https://ijpds.org/article/view/1391

Burton JK. Marwick CA, Galloway J, Hall C, Nind T, Reynish EL, Guthrie B. Identifying care-home residents in routine healthcare datasets: a diagnostic test accuracy study of five methods. Age and Ageing. 2019;48(1):114-121. https://doi.org/10.1093/ageing/afy137

Henderson DAG, Burton JK, Lynch E, Rintoul J, Clark D, Bailey N. Data Resource Profile: The Scottish Social Care Survey (SCS) and the Scottish Care Home Census (SCHC). International Journal of Population Data Sciences. 2019;4(1):24. https://doi.org/10.23889/ijpds.v4i1.1108

Publications showcasing applications of national data

Atherton I, Schneider A. Implications of socio-demographic change in place of death in Scotland 2001-2011: an analysis of linked census and death registration data. International Journal of Population Data Science, 2019, 4(3). https://doi.org/10.23889/ijpds.v4i3.1267

Bu F, Rutherford A. Dementia, home care and institutionalisation from hospitals in older people. European Journal of Ageing. 2019;16;283-91. https://doi.org/10.1007/s10433-018-0493-0

Burton JK, Lynch E, Love S, Rintoul J, Starr JM, Shenkin SD. Who lives in Scotland's care homes? Descriptive analysis using routinely collected social care data 2012-16. Journal of Royal College of Physicians of Edinburgh. 2019;49:12-22. https://doi.org/10.4997/JRCPE.2019.103

Burton JK, Papworth R, Haig C, McCowan C, Ford I, Stott DJ, Quinn TJ. Statin use is not associated with future long-term care admission: extended follow-up of two randomised controlled trials. Drugs & Aging. 2018;35:657-63. https://doi.org/10.1007/s40266-018-0560-4

Canny A, Robertson F, Knight P, Redpath A, Witham MD. An evaluation of the psychometric properties of the Indicator of Relative Need (IoRN) instrument. BMC Geriatrics. 2016;16:147. https://doi.org/10.1186/s12877-016-0321-3

Ciminata G, Geue C, Langhorne P, Wu O. A two-part model to estimate inpatient, outpatient, prescribing and care home costs associated with atrial fibrillation in Scotland. BMJ Open. 2020; 10:e028575. https://doi.org/10.1136/bmjopen-2018-028575

Corby DH, Everington D, Starr J, Deary IJ, Dibben C. The factors associated with entry to formal care for the elderly in Scotland: A longitudinal analysis. International Journal of Population Data Science. 2018;3(2). https://doi.org/10.23889/ijpds.v3i2.565

Douglas E, Rutherford A, Bell D. Pilot study protocol to inform a future longitudinal study of ageing using linked administrative data: Healthy Ageing in Scotland (HAGIS). BMJ Open. 2018;8(1):e018802. https://doi.org/10.1136/bmjopen-2017-018802

Grill P, Marwick C, De Souza N, Burton JK, Hughes C, Guthrie B. The burden of psychotropic and anticholinergic medicines use in care homes: population-based analysis in 147 care homes. Age and Ageing. 2020. https://doi.org/10.1093/ageing/afaa122

Henderson DAG, Atherton I, McCowan C, Mercer SW, Bailey N. Linkage of national health and social care data: a cross-sectional study of multimorbidity and social care use in people aged over 65 years in Scotland. Age and Ageing. 2020. https://doi.org/10.1093/ageing/afaa134

Lemmon, E. Utilisation of Personal Care Services in Scotland: The Influence of Unpaid Carers. Journal of Long-Term Care. 2020. 54-69. http://doi.org/10.31389/jltc.23

Robertson JM, Bowes A, Gibson G, McCabe L, Reynish EL, Rutherford AC, Wilinska M. Spotlight on Scotland: Assets and Opportunities for Ageing Research in a Shifting Sociopolitical Landscape. The Gerontologist. 2016;56)6):979-89. https://doi.org/10.1093/geront/gnw058