Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Services in Scotland: Findings from an analysis of surveys issued to NHS Boards in Autumn 2022

This report analyses survey responses from ten NHS Health Boards in Scotland to understand delivery of ME/CFS services, implementation of the updated ME/CFS NICE guidelines, barriers and opportunities to implementing the guidelines, and options for future ME/CFS service development.


8. References

British Association of Clinicians in ME/CFS (no date) Services Map. Available at: Services Map - BACME (Accessed 26/04/23).

Disability Rights UK (2021) NICE withdraws landmark ME/CFS guidance. Available at: NICE withdraws landmark ME/CFS guidance | Disability Rights UK (Accessed 06/04/23).

NHS (no date) Myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS). Available at: Myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS) - NHS (www.nhs.uk) (Accessed 06/04/23).

NICE Guidelines (2021) Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management (nice.org.uk) (Accessed 06/04/23).

Public Health Scotland (2020) ME-CFS healthcare needs assessment: Briefing. Available at: ME-CFS healthcare needs assessment: Briefing at 18 December 2020 (scotphn.net) (Accessed 06/04/23).

Royal College of Physicians (2021) Medical leaders sign joint statement in response to NICE guidance on ME/CFS. Available at: Medical leaders sign joint statement in response to NICE guidance on ME/CFS | RCP London (Accessed 06/04/23).

Scottish Government (2022) Report on a Scottish stakeholder review of the Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome NICE guideline. Available at: Report on a Scottish stakeholder review of the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome NICE guideline (www.gov.scot) (Accessed 06/04/23).

Scottish Public Health Network (ScotPHN) (2010) Health Care Needs Assessment of Services for people living with ME-CFS. Available at: ME-CFS SPHN HCNA Report Final Amended for web 261110.doc (scotphn.net) (Accessed 06/04/23)

Short Life Working Group (2002) Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) Outline for Development of Services for CFS/ME in Scotland: Report of the Scottish Short Life Working Group. Available at: HDL2003_02report.doc (scot.nhs.uk) (Accessed 06/04/23).

Contact

Email: socialresearch@gov.scot

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