Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) services in Scotland: health board survey - updated analysis
Findings from a survey of 14 NHS boards on service provision for ME/CFS, and barriers and opportunities for implementing the NICE guideline for ME/CFS locally. This is an update on survey responses that were published in spring 2023
8. References
British Association of Clinicians in ME/CFS (2023) ME/CFS National Services Survey 2023. Available as an attachment to Chronic Fatigue Syndrome: Health Services. Question for Department of Health and Social Care (Accessed 26/09/24).
Department of Health and Social Care (2024) Closed Consultation: The interim delivery plan on ME/CFS My full reality: the interim delivery plan on ME/CFS - GOV.UK (www.gov.uk) (Accessed 26/09/24).
Disability Rights UK (2021) NICE withdraws landmark ME/CFS guidance. Available at: NICE withdraws landmark ME/CFS guidance | Disability Rights UK (Accessed 26/09/24).
NHS (no date) Myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS). Available at: Myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS) - NHS (www.nhs.uk) (Accessed 26/09/24).
NICE Guidelines (2021) Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management (nice.org.uk) (Accessed 26/09/24).
Public Health Scotland (2020) ME-CFS healthcare needs assessment: Briefing. Available at: ME-CFS healthcare needs assessment: Briefing at 18 December 2020 (scotphn.net) (Accessed 26/09/24).
Scottish Government (2022) Report on a Scottish stakeholder review of the Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome NICE guideline. Available at: Report on a Scottish stakeholder review of the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome NICE guideline (www.gov.scot) (Accessed 26/09/24).
Scottish Government (2022) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Services in Scotland: Findings from an analysis of surveys issued to NHS Boards in Autumn 2022. Available at: Supporting documents - Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Services in Scotland: Findings from an analysis of surveys issued to NHS Boards in Autumn 2022 - gov.scot (www.gov.scot) (Accessed 26/09/24).
Scottish Publish Health Network (ScotPHN) (2010) Health Care Needs Assessment of Services for people living with ME-CFS. Available at: ME-CFS SPHN HCNA Report Final Amended for web 261110.doc (scotphn.net) (Accessed 26/09/24).
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Email: socialresearch@gov.scot
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