Neurological care and support: framework for action 2020-2025

Annex D References

1 Scottish Government. National Advisory Committee for Neurological Conditions. https://www.gov.scot/Topics/Health/Services/Neurological-Conditions/NACNC

2 Scottish Government. August 2014. Stroke Improvement Plan. Scottish Government, Edinburgh, ISBN 9781784127046. https://www.gov.scot/publications/stroke-improvement-plan/pages/2/

3 Scottish Government. June 2017. National Dementia Strategy: 2017-2020. Scottish Government, Edinburgh, ISBN 9781786528407. /publications/scotlands-national-dementia-strategy-2017-2020/

4 Scottish Government, March 2017. Mental Health Strategy 2017-2027. Scottish Government, Edinburgh, ISBN 9781786526144. https://www.gov.scot/publications/mental-health-strategy-2017-2027/

5 Scottish Government. June 2013. The keys to life: Improving Quality of Life for People with Learning Disabilities. Scottish Government, Edinburgh, ISBN 9781782566366. https://www.gov.scot/Publications/2013/06/1123

6 Scottish Government. May 2018. Part 4 of the Health, (Tobacco, Nicotine etc. and Care) (Scotland) Act 2016, Guidance on Provision of Communication Equipment and Support. Scottish Government, Edinburgh, ISBN 978-1-78851-958-8. https://www.gov.scot/publications/guidance-provision-communication-equipment-support-using-equipment/

7 Scottish Government. August 2018. Augmentative and alternative communication (AAC). national core pathway. Scottish Government, Edinburgh, ISBN 9781787811805. https://www.gov.scot/publications/national-augmentative-alternative-communication-aac-core-pathway/

8 Scottish Government. July 2014. It’s Not Rare to Have a Rare Disease: the Implementation Plan for Rare Diseases in Scotland, Scottish Government. Edinburgh, ISBN 9781784126575. https://www.gov.scot/publications/rare-rare-disease/pages/10/

9 Health and Social Care Alliance Scotland (2018). Priorities from the Lived Experience Project..Unpublished – available on request - clinical_priorities@gov.scot

10 Grant, I and Kavanagh, J. April 2018. NACNC briefing on estimating prevalence of neurological disorders in Scotland from the Scottish Burden Of Disease study. Scottish Burden of Diseases Study Team, NHS National Services Scotland Information Services Division. Unpublished - available on request - clinical_priorities@gov.scot

11 National Advisory Committee for Neurological Conditions (2018). Mapping Neurological Services in Scotland 2017/18. Unpublished - available on request - clinical_priorities@gov.scot

12 Ilson, S. August 2018. Establishing Best Practice in Neurological Service Delivery and the Ideals of an Action Plan. Scottish Government, Edinburgh. Unpublished - available on request - clinical_priorities@gov.scot

13 Ilson, S. (2018). Person Centred Care and Self-Management. Scottish Government, Edinburgh. Unpublished - available on request - clinical_priorities@gov.scot

14 Welsh Government. (2017). Neurological Conditions Delivery Plan. https://gov.wales/topics/health/nhswales/plans/neurological/?lang=en

15 Health and Social Care Alliance Scotland, The House of Care Model..https://www.alliance-scotland.org.uk/health-and-social-care-integration/house-of-care/house-of-care-model

16 Scottish Huntington’s Association (2017). National Care Framework for Huntington’s Disease..https://hdscotland.org/a-national-care-framework-for-huntingtons-disease/

17 Scottish Government (2016). Active and Independent Living (AILIP) Logic Model Version 7. Scottish Government, Edinburgh, http://www.widgetlibrary.knowledge.scot.nhs.uk/media/WidgetFiles/1012597/Logic%20Model%20V7.pdf

18 Singh, D and Hamm, C. (2006). Improving Care for People with Long Term Conditions: a review of UK and International Frameworks. Birmingham Health Services Management Centre, NHS Institute for Innovation and Improvement, ISBN 07044 2584 X

19 Scottish Government (2015). Healthier Strategic Objective: A Healthier Scotland. Scottish Government, Edinburgh. https://www2.gov.scot/About/Performance/scotPerforms/objectives/healthier

20 Neurological Alliance. April 2003. Neuro numbers: a brief review of the numbers of people in the UK with a neurological condition. Neurological Alliance. http://www.neural.org.uk/store/assets/files/20/original/NeuroNumbers.pdf

21 Association of British Neurologists. ABN Acute Neurology report. London: ABN, 2017. www.theabn.org/news/abn-acute-neurology-report.html

22 Scottish Public Health Observatory (2017). Scottish Burden of Disease study, 2015. NHS Health Scotland and ISD, Edinburgh. https://www.scotpho.org.uk/comparative-health/burden-of-disease/overview

23 World Health Organisation (2015). What are neurological disorders?.https://www.who.int/features/qa/55/en/

24 International Statistical Classification of Diseases and Related Health Problems 10th Revision (ICD-10)-WHO Version for ;2016: https://icd.who.int/browse10/2016/en#/VI

25 Espay, A.J., Aybek, S., Carson, A., Edwards, M.J., Goldstein, L.H., Hallett, M., LaFaver, K., LaFrance, W.C., Lang, A.E., Nicholson, T. and Nielsen, G., (2018). Current concepts in diagnosis and treatment of functional neurological disorders. JAMA neurology, 75(9),.

26 Scottish Government. April 2019.. Personalising Realistic Medicine: Chief Medical Officer for Scotland’s Annual Report 2017-2018. Scottish Government, Edinburgh, ISBN: 9781787814349. https://www.gov.scot/publications/personalising-realistic-medicine-chief-medical-officer-scotland-annual-report-2017-2018/

27 Social Care (Self-directed Support) (Scotland) Act 2013. https://www2.gov.scot/Topics/Health/Support-Social-Care/Support/Self-Directed-Support

28 Scottish Government. March 2016. Creating a healthier Scotland - What matters to you, Scottish Government, Edinburgh, ISBN: 9781786521033. https://www.gov.scot/publications/creating-healthier-scotland-matters/

29 Scottish Government. November 2017. Making it easier: a health literacy action plan 2017-2025, Scottish Government, Edinburgh, ISBN: 9781788511353. https://www.gov.scot/publications/making-easier-health-literacy-action-plan-scotland-2017-2025/

30 Scottish Government. June 2019. Patient rights and responsibilities: charter, Scottish Government, Edinburgh, ISBN: 9781787819498. https://www.gov.scot/publications/charter-patient-rights-responsibilities-2/

31 Carers (Scotland) Act 2016. https://www2.gov.scot/Topics/Health/Support-Social-Care/Unpaid-Carers/Implementation/Carers-scotland-act-2016

32 Scottish Government. Getting it right for every child (GIRFEC). https://www.gov.scot/policies/girfec/

33 The Children and Young People (Scotland) Act 2014. http://www.legislation.gov.uk/asp/2014/8/contents/enacted

34 Scottish Transitions Forum (2019). Principles of Good Transitions 3, 2nd Ed. http://scottishtransitions.org.uk/blank/wp-content/uploads/2019/08/Principles-of-Transitions-Introduction.pdf

35 Scottish Government. June 2017. Health and Social Care Standards: My support, my life. Scottish Government, Edinburgh. ISBN 9781788510158. https://www.gov.scot/publications/health-social-care-standards-support-life/

36 Healthcare Improvement Scotland (2019). General standards for neurological care and support. NHS Scotland. http://www.healthcareimprovementscotland.org/our_work/long_term_conditions/neurological_health_services/neurological_care_standards.aspx

37 Scottish Social Services Council (2016). Codes of Practice for Social Service Workers and Employers. http://socialworkscotland.org/wp-content/uploads/2018/01/SSSCCodesofPractice2016.pdf

38 Scottish Government. December 2017. National health and social care workforce plan: part two. Scottish Government, Edinburgh. ISBN: 9781788514651. https://www.gov.scot/publications/national-health-social-care-workforce-plan-part-2-framework-improving/

39 Scottish Government. February 2016. A National Clinical Strategy for Scotland. Scottish Government, Edinburgh. ISBN: 9781786520012. https://www.gov.scot/publications/national-clinical-strategy-scotland/

40 Scottish Government. December 2016. Health and Social Care Delivery Plan. Scottish Government, Edinburgh. ISBN: 9781786527011. https://www.gov.scot/publications/health-social-care-delivery-plan/

41 Scottish Government. October 2018. Waiting Times Improvement Plan. Scottish Government, Edinburgh. ISBN: 9781787812482. https://www.gov.scot/publications/waiting-times-improvement-plan/