Neurological Framework Funding: list of organisations funded

Improving systems

Epilepsy Scotland

Area covered: Lothian
Improving Mental Health Outcomes – integrated the NHS and third sector in one clearly defined pathway and evaluated the electronic, community-based screening tool for depression, anxiety, and suicidality in PWE (people with epilepsy) used by NHS Lothian. Improved the wellbeing for people with epilepsy and their families by widening the geographical area that the wellbeing service serves and increased the number of people the service can support.
Funding given: 2022-2023: £41,793
Completed: March 2023
Final report

Epilepsy Connections, Lanarkshire Epilepsy and Quarriers​​​​

Area covered: Scotland wide
National Epilepsy Collaborative – Developing and hosting a national epilepsy collaborative across the third sector and NHS Scotland to create a framework to bring about greater consistency in patient experience. This project produced a national commissioning toolkit for social support for epilepsy.
Funding given 2022-2023 - £27,500
Completed: May 2024 
Toolkit – May 2024

NHS Ayrshire and Arran, ARC Housing and CP Scotland

Area covered: Scotland wide
Undertook an evidence review and collaborative planning work to prepare for the development of neurology specific principles of good transition across the lifespan.
Produced evidence on the impact of Good Practice in Transitions for patients with neurological conditions, published Literature Review, and developed a set of neurology specific guiding principles, a good practice framework and a model for evaluation of existing models of transition to inform best practice.
Funding given: 2020-2021: £6,800, 2021-2022: £19,628
Total of £26,428
Completion Date: April 2022
Final report – June 2023

NHS Greater Glasgow and Clyde

Area covered: NHS Greater Glasgow and Clyde
Advance Physiotherapy Practitioner – Established a model of care with an Advanced Practitioner Physiotherapist in Neurology, and focused on evidencing the model in the Movement Disorders service, commencing with Parkinson’s disease.
Funding given - 2020-2021: £23,802
Completion date: April 2021
Final report available on request

NHS Greater Glasgow and Clyde

Area covered: NHS Greater Glasgow & Clyde
Scottish Epilepsy Register – Establish and roll out an epilepsy register in NHS Greater Glasgow and Clyde initially. The register improves patient safety by linking existing data sets (pregnancy, medication adherence, A&E attendance, mortality) to a ‘dashboard’ in outpatient clinics. This alerts clinicians to patients who may need a review, and provides data for research.
Funding given: 2020-2021: £42,100, 2021-2022: £78,690
Total of £120,790
Scottish Government is working with this project to support its establishment in all NHS boards Scotland.

Progressive Supranuclear Palsy (PSP) Association

Area covered: Scotland wide
Service mapping – Engaged dedicated project worker time to collaborate with colleagues in community and hospital settings to gather information on the key health and care staff that can support people with PSP across the 14 health board regions in Scotland. This informs the complex picture of the routes to support for those with the conditions and their families.
Funding given: £13,690
Completed April 2021
Report available on request

Strathcarron Hospice, Talking Mats Limited, Scottish Centre for Simulation and Clinical Human Factors (SCSC)

Area covered: Forth Valley
Making end of life planning accessible - evaluating Talking Mats. This visual framework helped people with neurological condition express their views about anticipatory care planning.
​​​Funding given: 2022-2023: £29,900
Completed: June 2023
Report available on request

NHS Forth Valley, Stirling and Clackmannanshire Health and Social Care Partnership

Area covered: Forth Valley, Stirling and Clackmannanshire
Scoping Exercise and Creating Networks – This was to establish a virtual local neurological network and scope out the current local service provision for people with neurological conditions to co-produce a service signposting directory
Funding given: 2020-2021: £29,340
Due to recruitment challenges this project was unable to commence and funding has been used for general provision of neurology services.