Pelvic Floor Registry Implementation Group minutes: December 2021

Items and actions

Contacts 

Sara Davies
Chris Hemming
David Bishop
Cory Sherazee

Spotlight and commentary

• purpose of the group is to oversee rollout and evaluation and to subsequently look at the formal rollout through the NHS
• the remit of the group is to support the development of an information toolkit for participants in the pilot, as well as other health boards

Highlights

Clinical questionnaires

• the chair shared the clinic questionnaire which is self-completed by the patient. It gives us a great idea of what women have with regard to their urinary problem in good detail – using Linkert scale
• with the mesh removal centres across the UK, there is lots of discussion about introducing EPAC electronic questionnaire
• the chair highlighted the value of utilising hybrid questionnaires

Updates from boards

NHS Grampian

• forging ahead with operating notes and coding
• information should go into Opera initially and not only amended in Opnote as it can’t then be edited

Evaluation of pilot

• first questionnaire has gone out to gauge pre-start input, and is due back by the 17 December 2021

NHS digital update on pelvic floor registry

• progressing IG work, received draft of s255 and hope to get signed by both NHS Digital and NSS in January so data can flow to NHS Digital, some other work to get data flowing back to PHS etc. but hopefully this can be covered in ISA
• 160 providers in England – 93 actively engaged and submitting data – about 50/60 have been specially commissioned for POP procedures so they are the focus
• team working to refresh the webpage and hopefully this will include some information requested in the info pack

Information governance

• revised draft Section 255 letter shared with NHS Digital colleagues and awaiting feedback – hopeful that it’s quite close to other devolved administrations and can progress quickly
• Information pack containing documents on coding and IG, how we use upload methods etc. will be shared with boards, hopefully in January 2022

Summary and actions

• next meetings: 12 January 2022, 9 February 2022, 9 March 2022
• each board needs different support which is fine so that we are inputting the same quality of data
• IG work progressing and hope to have something in place to start flowing data in January

Actions

• share EPAC link with group - Veenu Tyagi
• share up to date list of codes with IG subgroup – Danish Mahmood
• collate and share information pack – PFRGIG Chair, IG subgroup Chair, SG
• send invite to Martin Clunie – Pam Cairns
• complete short evaluation questionnaire by 17 December, the questionnaire can be found here - all