Public Acceptability of Data Sharing Between the Public, Private and Third Sectors for Research Purposes
Report of a deliberative research project on the public's attitudes towards data sharing. It focuses particularly on a) the public's opinion about data sharing with the private and third sector; b) the acceptability of different methods for sharing benefits gained from the use of their data; and c) the appeal of different methods for empowering citizens in decision making about the use of their data.
APPENDIX F: PROMPT CARDS CONTAINING EXAMPLES OF ORGANISATIONS, DATA TYPE AND DATA USES
Examples of organisations (each shown on a separate card) | ||
Public sector: | Private sector: | Third sector: |
---|---|---|
Scottish Government | Pharmaceutical companies and private health & social care | Health & social care charities |
NHS | Supermarkets and other shops/ retailers | Homelessness & housing charities |
Police | Banking and financial Services | Children's charities |
Local councils | Security & surveillance companies | Social enterprises (e.g. the Big Issue) |
Social work services | (e.g. G4S) & private law firms | Pressure groups/ non-governmental organisations (e.g. Greenpeace/British Medical Association) |
Internet service providers and social media |
Examples of data types (each displayed on a separate card) | Examples of data uses (each displayed on a separate card) |
---|---|
Health records | To develop new drugs or products |
Education | To plan & improve services (e.g. the number/types of hospitals needed in an area) |
Police & criminal justice records | To understand the public's behaviour (e.g. diet and exercise, use of public transport) |
Benefits claimed | Understand health, illness and disease |
Social work records | Learn about the population (e.g. whether or not the population is ageing) |
Housing | To inform and test the effect of policy (e.g. whether free school meals help to improve children's health) |
Personal characteristics (e.g. age, sex, ethnicity religion) | |
Postcode & type of area you live |
Contact
Email: Wendy van der Neut
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