Public dialogue on data sharing outside of the public sector in Scotland

Wednesday 22 March

18.00–21.00

Re-introduce participants to the panel, and introduce key concepts

Participants were re-introduced to each other and re-familiarised with the process. The key concepts of private sector use of data and benefit sharing were introduced. Participants shared initial views on use of data by private sector organisations and perceptions on public benefit, learned more about private sector use of data, and were introduced to the concept of benefit sharing.

Ciaran Mulholland (Ipsos): overview of private sector use of data

University of Edinburgh: introduction to benefit sharing

Presentations delivered in plenary and followed by small breakout discussions and Q&A in plenary.

Thursday 30 March

18.00–21.00

Explore views on private sector involvement and benefit sharing in more detail and reach conclusions

Participants explored private sector involvement and benefit sharing in more detail using real-life examples. Presentations, discussions and exercises helped participants bring everything together and reach conclusions on private sector involvement, preferred ways of benefit sharing, and who should benefit.

IQVIA – private sector example of data use

National Emergencies Trust (NET) – third sector example of data use

Use My Data – perspective from a patient group

University of Edinburgh – ethical considerations

Presentations delivered in plenary and followed by small breakout discussions and Q&A in plenary.