Rare disease action plan
Scotland’s first action plan for rare disease sets out the actions that we, our NHS, partners and stakeholders will take to improve the lives of people in living with a rare disease. The plan supports the shared priorities of the 2021 UK Rare Diseases Framework.
Footnotes
1. It's Not Rare to Have a Rare Disease - gov.scot (www.gov.scot)
2. UK_Strategy_for_Rare_Diseases.pdf (publishing.service.gov.uk)
3. It's Not Rare to Have a Rare Disease - gov.scot (www.gov.scot)
4. UK Rare Diseases Framework - GOV.UK (www.gov.uk)
5. Genome UK: the future of healthcare - GOV.UK (www.gov.uk)
6. Genome UK: shared commitments for UK-wide implementation 2022 to 2025 - GOV.UK (www.gov.uk)
7. Prevalence charts and tables | EU RD Platform (europa.eu)
8. CPG Report: Improving Care for Rare Conditions in Scotland | Genetic Alliance UK
9. Co-ordinated care for people affected by rare diseases: the CONCORD mixed-methods study (nihr.ac.uk)
13. PAMIS Digital Passports | PAMIS
14. It's OK to Ask | NHS inform
15. It's OK to Ask – Public messaging campaign from NHS Scotland – Realistic Medicine
16. Mental Health Strategy 2017-2027 - gov.scot (www.gov.scot)
18. Review of Access to New Medicines - gov.scot (www.gov.scot)
19. SMC | Scottish Medicines Consortium
20. Ultra-orphan medicines pathway: guidance - gov.scot (www.gov.scot)
21. Why Medicines Matter | Genetic Alliance UK
22. Video consultations - public and clinician views: consultation summary - gov.scot (www.gov.scot)
Contact
Email: scott.thomson2@gov.scot
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