A Right to Speak Supporting Individuals who use Alternative and Augmentative Communication

References

1. Millar, J. & Scott, J. (1998) Augmentative Communication in Practice: Scotland http://www.acipscotland.org.uk/, accessed August 2011

2. Clarke, H.H, & Clarke, E.V. (1977) Psychology and Language, Harcourt Brace Jovanovich

3. Light, J. (2000) Communication is the essence of human life: reflections on communicative competence, Augmentative and Alternative Communication, 13, 61-70

4. Gaulthier,A., Vignola, A., Calvo, A., Cavallo,E., Moglia,C., Selliti,L.(2007) A longitudinal study on quality of life and depression in ALS patient-caregiver couples, Neurology, 68:923-926

5. Hecht,M., Hillemacher,T., Grasel, E., Tigges, S., Winterholler, M., Heuss, D., Hilz, M.J., Neundorfer,B. (2002) Subjective experience and coping with ALS, ALS and other Motor Neurone Disorders, 3, 225-23

6. Goldstein, L., Adamson, M.,Jeffrey,L., Down, K., Barby, T., Wilson, C., Leigh, N.(1998) The psychological impact of MND on patients and carers, Journal of Neurological Science, 160 (Suppl. 1), S114-121

7. Fletcher-Campbell F.,Reid G., Soler, M., (2009) Approaching Difficulties in Literacy Development: Assessment, Pedagogy and Programmes, Open University Press

8. Royal College of Speech and Language Therapists, (2006) Communicating Quality 3, RCSLT

9. For Scotland's Disabled Children(2010) Setting The Scene: initial findings of a Scotland wide survey of services for disabled children http://www.fsdc.org.uk/setting-the-scene (accessed August 2011)

10. The Scottish Government, 2005, Building Health Service Fit for the Future, http://www.scotland.gov.uk/Publications/2005/05/23141307/13104

11. McColl,F., & Moodie, E., (1998), Training Staff to Support AAC Users in Scotland: Current Status and Needs, Augmentative and Alternative Communication, 14, 228-238

12. National Telecare Development, Scotland, http://www.jitscotland.org.uk/action-areas/telecare-in-scotland/ (accessed June 2009)

13. The Scottish Government, A Guide to Implementing Getting It Right for Every Child (2010), The Scottish Government

14. McNaughton, D., Light, J., & Arnold, K.B. (2002). "Getting your 'wheel' in the door": The successful full-time employment experiences of individuals with cerebral palsy who use augmentative and alternative communication. Augmentative and lternative Communication, 18, 59-76

15. John, A.K.(2011) AAC Synthesis, Royal College of Speech and Language Therapists

16. Schlosser,R., Lee, D. (2001) Promoting generalisation and maintenance in augmentative and alternative communication: a meta analysis of 20 years of effectiveness research, Augmentative and Alternative Communication, 164 (4) 208-226

17. Millar, D. C., Light, J. C., & Schlosser, R. W. (2006). The impact of augmentative and alternative communication intervention on the speech production of individuals with developmental disabilities: A research review. Journal of Speech, Language, and Hearing Research, 49, 248-264

18. Schlosser, R., & Wendt, O. (2008). Effects of augmentative and alternative communication intervention on speech production in children with autism: A systematic review. American Journal of Speech-Language Pathology, 17(3), 212-230

19. Saito, Y., & Turnbull, A. (2007). Augmentative and Alternative Communication Practice in the Pursuit of Family Quality of Life: A Review of the Literature Research & Practice for Persons with Severe Disabilities, 32(1), 50-65

20. Machalleck, W., Sanford,A., Lang, R,, Rispoli,M., Molfenter, N., Mbeseha, M. (2010) Literacy Interventions for students with physical and developmental disabilities who use aided device, Journal of Developmental and Physical Disabilities, 22(3), 219-240

21. Alwell, M., Cobb, B. (2007) Social/communicative interventions and transition outcomes for youth with disabilities: a systematic review. Kalanazoo, M.I., USA:National Secondary transition Technical Assistance Centre

22. Pennington,L., Goldbart, J., Marshall,J. (2004) interaction training for conversation partners of children with cerebral palsy, a systematic review, International Journal of Language and Communication Disorders, 39(2), 151-170

23. Hanson, E., Yorkston, K., Beukleman, D. (2004) Speech supplementation techniques for dysarthria: a systematic review. Journal of Medical Speech and Language Pathology 12(2), 9-29

24. Pennington, L., Goldbart,J., Marshall,J. (2004) Speech and language therapy to improve the communication skills of children with cerebral palsy, Cochrane Database of Systematic Reviews, 2004, issue 2

25. Gray, A. (2008) Speech and language therapists' perceptions of augmentative and alternative communication use in people with motor neurone disease, Masters Thesis, University of Glasgow, Department of General Practice and Primary Care

26. Bloch, S., Wilkinson, R., (2004) The understandability of AAC: a conversational analysis of dysarthric speech, Augmentative and Alternative Communication, 20(4), 272-282

27. Laskar, J., Bedrosian, J., (2001), Promoting acceptance of augmentative and alternative communication in adults with acquired communication disorders, Augmentative and Alternative Communication, 17 (3) 141-153

28. The Scottish Government, 2010, The Healthcare Quality Strategy for NHSScotland, http://www.scotland.gov.uk/Publications/2010/05/10102307/0

29. Hass, U., Andersson, A., Brodin, H., Persson, J.,(1997) Assessment of Computer - aided assistive technology: Analysis of Outcomes and Costs, Augmentative and Alternative Communication, 13, 125-135

30. Tolley, K., Leese, B., Wright, K., Hennessy, S., Rowley, C., Stowe, J., Chamberlain, A. (1995), Communication aids for the speech impaired: cost and quality of life outcomes of assessment programs provided by specialist communication aid centers in the United Kingdom, International Journal of Technology Assessment in Health Care, 11:2, 196-213

31. The Scottish Government, 2004, Purposes and Principles for the Curriculum 3-18, http://www.scotland.gov.uk/Publications/2004/11/20178/45862

32. De Ruyter, 1995, in The Handbook of AAC, eds, Glennen & DeCoste,1997, San Diego: Singular Publishing Group

33. The Scottish Government, The Common Core, (http://www.scotland.gov.uk/Topics/People/YoungPeople/childrensservices/workforcedevelopment

34. The Patients Rights Act (2011), Scotland

35. Murphy, J., 2009,Talking Mats: a study of communication difficulties and the feasibility and effectiveness of a low tech communication framework, PhD thesis, Pub. University of Stirling. ISBN 978-1-85769 244 0

36. Millar, S., 2003, Communication Passports: guidelines to good practice, pub. University of Edinburgh

37. The Scottish Government, 2007, National Guidance on Self Directed Support, http://www.scotland.gov.uk/Publications/2007/07/04093127/0

38. World Health Organisation, http://www.who.int/classifications/icf/en/ (accessed June 2011)

39. National Outcomes, The Scottish Government, http://www.scotland.gov.uk/About/scotPerforms/outcomes (accessed June 2011)

40. The Scottish Executive, 2006, Delivering for Health, http://www.scotland.gov.uk/Resource/Doc/76169/0018996.pdf

41. The Scottish Government ,2008, The Early Years Framework, http://www.scotland.gov.uk/Resource/Doc/257007/0076309.pdf

42. 21^st Century Social Work Review Group,2005, Changing Lives, the Scottish Executive http://scotland.gov.uka68e9cdf-b5c5-4eca-90eb-4d2cf91a19e8

43. Feachem RG, Sekhri NK, White KL.2002, Getting more for their dollar: a comparison of the NHS with California's Kaiser Permanente. British Medical Journal, 324(7330): 135-41

44. The Scottish Government, 2010,Long Term Conditions Collaborative: Improving Care Pathways, http://www.scotland.gov.uk/Resource/Doc/309257/0097421.pdf

45. The Scottish Government, 2009, Wheelchair and seating service modernisation: action plan

46. The Scottish Government, 2008, Public Procurement Reform Project: The Scottish Procurement Policy Handbook

47. The Scottish Government, 2009, Guidance on Provision of Equipment and Adaptations

48. Beukleman, D., Miranda, P. (1998) Augmentative and Alternative communication:management of severe communication disorders in children and adults, 2^nd edition,Paul H. Brookes publishing, Baltimore

49. Fried-Oken M., and Bersani, H.(2000) Speaking Up and Spelling It Out: Personal essays on augmentative and alternative communication, Paul H. Brookes Publishing, Baltimore

50. Murphy J & Cameron L (2005) Talking Mats: A Resource to Enhance Communication. Pub. University of Stirling. ISBN 1 85769 2144

51. Bornman J and Murphy J (2006) Using the ICF in goal setting:clinical application using Talking Mats Disability and Rehabilitation: Assistive Technology 1(3):145-154

52. Gillespie A, Murphy J & Place M (2010) Divergences of Perspective Between People With Aphasia and their Family Caregivers Aphasiology 24(12)1559-1575

53. Murphy J and Cameron L (2008)The Effectiveness of Talking Mats for People with Intellectual Disability British Journal of Learning Disability 36: 232-241

54. Murphy J. Gray C M, Cox S, van Achterberg T, Wyke S (2010) The effectiveness of the Talking Mats Framework with People with Dementia. Dementia: International Journal of Social research and Practice 9(4) 454-472

55. The Scottish Government, 2010, Towards an Autism Strategy

56. United Kingdom Collaborative Cerebral Palsy Registers, www.liv.ac.uk/publichealth/ukcp/UKCPhtml. (accessed January 2011)

57. Hutton, Hemming and UK-CP (2006) Life expectancy of children with cerebral palsy, http://www.warwick.ac.uk/fac/sci/statistics/staff/academicresearch/hutton/scope4.pdf (accessed January 2011)

58. Fauconnier, J., Dickenson, h.o., Becking, E., Marcelli,M., McManus, V., Michelsen,S., Parkes, J., Parkinson,K.N., Thyen, V., Arnaud, C., Clover, A. (2009), Participation in life situations of 8 to 12 year old children with cerebral palsy: cross sectional European Study, British Medical Journal, 338:b.1458

59. The Scottish Government, 2010, Scotland's National Dementia Strategy

60. The Scottish Government, 2009, The Same As You?

61. Forbes, R.B, Colville, S., Parrat,J. Swingler, R.J (2007) The incidence of motor neurone disease in Scotland, Journal of Neurology, 254, 866-869

62. Forbes, R.B., Colville,S.,Swingler, R.J.(2004) The epidemiology of amoytrphic lateral sclerosis (ALS/MND) in people aged 80 years or over, Age and Ageing, 33, 131-134

63. Worms, P.M (2001) The epidemiology of motor neurone disease: a review of recent studies, Journal of Neurological Sciences, 191(1:2),3-9

64. O'Toole, O., Traynor, B.J., Brennan, P., Sheenan,C., Frost, E., Corr, B., Hardiman, O. (2008) Epidemiology and clinical features of amyotrphic lateral sclerosis in Ireland between 1995 and 2004, Journal of Neurology, Neurosurgery and Psychaitry, 79, 30-32

65. del Augila, M.A., Longsteth,W.T., McGuire,V., Koepsell, T.D. (2003) Prognosis in amyotrohic lateral sclerosis, Neurology, 60 (5), 813-819

66. Czaplinski,A., Yen, A.A., Simpson, E.P. (2006) Slower disease progression and prolonged survival in contemporary patients with amyotrphic lateral sclerosis, Archives of Neurology, 63, 1139-1143

67. Forbes, R.B.,Colville,S.,Cran,G.W.,Swingler,R.J. (2004) Unexpexted decline in survival from amyotrophic lateral scerosis/motor neurone disease, Journal of Neurology, Neurourgery and Psychiatry,75, 1753-1755

68. The National Collaborating Centre for Chronic Conditions (2004) Multiple Sclerosis: national clinical guideline for diagnosis and management in primary and secondary care

69. The Scottish Intercollegiate Guideline Network, 2010, No. 113, Diagnosis and pharmacological management of patients with Parkinson's disease

70. The Scottish Intercollegiate Guideline Network,2010, No.118,Managementof patients with stroke: rehabilitation, prevention and management of complications and discharge planning

71. The Royal College of Physicians (2010) National clinical Guidelines for Stroke, 3^rd edition