A Scotland-wide Data Linkage Framework for Statistics and Research: Consultation Paper on the Aims and Guiding Principles

D: Relevant publications and links

Special Issue of Healthcare Policy (Longwoods, 2011)
http://www.longwoods.com/publications/healthcare-policy/22111

Identity Management and Privacy Principles (Scottish Government, 2011)
http://www.scotland.gov.uk/Topics/Government/PublicServiceReform/efficientgovernment/privacyprinciples

Data Sharing: Legal Guidance for the Public Sector (Scottish Government, 2004)
http://www.scotland.gov.uk/Publications/2004/10/20158/45784

Data sharing code of practice (ICO, 2011)
http://www.ico.gov.uk/for_organisations/data_protection/topic_guides/~/media/documents/library/
Data_Protection/Detailed_specialist_guides/data_sharing_code_of_practice.ashx

Government Security Policy Framework (Cabinet Office, 2011)
http://www.cabinetoffice.gov.uk/sites/default/files/resources/hmg-security-policy_0_0.pdf

National Statistician's Guidance: Confidentiality of Official Statistics (Government Statistical Service, 2009)
http://www.statisticsauthority.gov.uk/national-statistician/ns-reports--reviews-and-guidance/national-statistician-s-guidance/confidentiality-of-official-statistics.pdf

SHIP Guiding Principles and Best Practices (Scottish Health Informatics Programme, 2010)
http://www.scot-ship.ac.uk/sites/default/files/Reports/Guiding_Principles_and_ Best_Practices_221010.pdf

Transparent Government, Not Transparent Citizens: A Report on Privacy and Transparency for the Cabinet Office. (Cabinet Office 2011)
http://www.cabinetoffice.gov.uk/sites/default/files/resources/transparency-and-privacy-review-annex-b.pdf

Links to data linkage projects and centres worldwide

Scottish Health Informatics Programme
http://www.scot-ship.ac.uk/

Scottish Longitudinal Survey
http://www.lscs.ac.uk/sls/

ScotXed
https://www.scotxed.net/default.aspx

South Australia and Northern Territory DataLink
https://www.santdatalink.org.au/

Data Linkage Western Australia
http://www.datalinkage-wa.org/

Australian Government: Statistical Data Integration Involving Commonwealth Data
http://www.nss.gov.au/nss/home.nsf/pages/Data+Integration+Landing+Page?OpenDocument

Manitoba Centre for Health Policy: Population Health Research Data Repository
http://umanitoba.ca/faculties/medicine/units/community_health_sciences/departmental_units/mchp/resources/repository/health_admin.html