Publication - Statistics

Scottish Cancer Patient Experience Survey 2015/16

Published: 6 June 2016
ISBN: 9781786522979

Results from the 2015/16 Scottish Cancer Patient Experience Survey. The survey covers the full care journey that a cancer patient experiences, from thinking that something might be wrong with them to the support they received after their acute-care treatm

Supporting documents

Annex C: Guide to positive scoring

Question number	Original Question Text	Positive %	Neither positive nor negative %	Negative %
2	How do you feel about the length of time you had to wait before your first appointment with a hospital doctor?	I was seen as soon as I thought was necessary	I should have been seen a bit sooner	I should have been seen a lot sooner
5	Beforehand, did you have all the information you needed about your test?	Yes		No, I would have liked more written information No, I would have liked more verbal information
6	Overall, how did you feel about the length of time you had to wait for your test to be done?	It was about right	It was a little too long	It was much too long
7	Were the results of the test explained in a way you could understand?	Yes, completely	Yes, to some extent	No, I did not understand the explanation I did not have an explanation but would have liked one
9	When you were first told that you had cancer, had you been told you could bring a family member or friend with you?	Yes		No
10	How do you feel about the way you were told you had cancer?	It was done sensitively	It should have been done a bit more sensitively	It should have been done a lot more sensitively
11	Did you understand the explanation of what was wrong with you?	Yes, I completely understood it	Yes, I understood some of it	No, I did not understand it
12	When you were told you had cancer, were you given written information about the type of cancer you had?	Yes, and it was easy to understand	-	Yes, but it was difficult to understand No, I was not given written information about the type of cancer I had
13	Before your cancer treatment started, were your treatment options explained to you?	Yes, completely	Yes, to some extent	No
14	Were the possible side effects of treatment(s) explained in a way you could understand?	Yes, definitely	Yes, to some extent	No, side effects were not explained
15	Were you offered practical advice and support in dealing with the side effects of your treatment(s)?	Yes, definitely	Yes, to some extent	No, I was not offered any practical advice or support
16	Before you started your treatment(s), were you also told about any side effects of the treatment that could affect you in the future rather than straight away?	Yes, definitely	Yes, to some extent	No, future side effects were not explained
17	Were you involved as much as you wanted to be in decisions about your care and treatment?	Yes, definitely	Yes, to some extent	No, but I would like to have been more involved
18	Were you given the name of a Clinical Nurse Specialist who would support you through your treatment?	Yes	-	No
19	How easy or difficult has it been for you to contact your Clinical Nurse Specialist?	Very easy Quite easy	Neither easy nor difficult	Quite difficult Very difficult
20	When you have had important questions to ask your Clinical Nurse Specialist, how often have you got answers you could understand?	All or most of the time	Some of the time	Rarely or never
21	Did hospital staff give you information about support or self-help groups for people with cancer?	Yes		No, but I would have liked information
22	Did hospital staff discuss with you or give you information about the impact cancer could have on your day to day activities (for example, your work life or education)?	Yes		No, but I would have liked a discussion or information
23	Did hospital staff give you information about how to get financial help or any benefits you might be entitled to?	Yes		No, but I would have liked information
25	Beforehand, did you have all the information you needed about your operation?	Yes		No, I would have liked more written information No, I would have liked more verbal information
26	After the operation, did a member of staff explain how it had gone in a way you could understand?	Yes, completely	Yes, to some extent	No, but I would have liked an explanation
29	Did groups of doctors and nurses talk in front of you as if you weren't there?	No	Yes, sometimes	Yes, often
30	Did you have confidence and trust in the doctors treating you?	Yes, in all of them	Yes, in some of them	No, in none of them
31	If your family or someone else close to you wanted to talk to a doctor, were they able to?	Yes, definitely	Yes, to some extent	No
32	Did you have confidence and trust in the ward nurses treating you?	Yes, in all of them	Yes, in some of them	No, in none of them
33	In your opinion, were there enough nurses on duty to care for you in hospital?	There were always or nearly always enough on duty	There were sometimes enough on duty	There were rarely or never enough on duty
34	While you were in hospital did the doctors and nurses ask you what name you prefer to be called by?	Yes, all of them did	Only some of them did	None of them did
35	Were you given enough privacy when discussing your condition or treatment?	Yes, always	Yes, sometimes	No
36	During your hospital visit, did you find someone on the hospital staff to talk to about your worries and fears?	Yes, definitely	Yes, to some extent	No
37	Do you think the hospital staff did everything they could to help control your pain?	Yes, definitely	Yes, to some extent	No
38	Overall, did you feel you were treated with respect and dignity while you were in hospital?	Yes, always	Yes, sometimes	No
39	Were you given clear written information about what you should or should not do after leaving hospital?	Yes	-	No
40	Did hospital staff tell you who to contact if you were worried about your condition or treatment after you left hospital?	Yes	-	No
43	While you were being treated as an outpatient or day case, did you find someone on the hospital staff to talk to about your worries and fears?	Yes, definitely	Yes, to some extent	No
44	The last time you had an outpatients appointment with a cancer doctor, did they have the right documents, such as medical notes, x-rays and test results?	Yes	-	No
47	Beforehand, did you have all of the information you needed about your radiotherapy treatment?	Yes, completely	Yes, to some extent	No
48	Once you started your treatment, were you given enough information about whether your radiotherapy was working in a way you could understand?	Yes, completely	Yes, to some extent	No
51	Beforehand, did you have all of the information you needed about your chemotherapy treatment?	Yes, completely	Yes, to some extent	No
52	Once you started your treatment, were you given enough information about whether your chemotherapy was working in a way you could understand?	Yes, completely	Yes, to some extent	No
54	Did the doctors or nurses give your family or someone close to you all the information they needed to help care for you at home?	Yes, definitely	Yes, to some extent	No
55	During your cancer treatment, were you given enough care and support from health or social services (for example, district nurses, home helps or physiotherapists)?	Yes, definitely	Yes, to some extent	No
56	Once your cancer treatment finished were you given enough care and support from health or social services (for example, district nurses, home helps or physiotherapists)?	Yes, definitely	Yes, to some extent	No
57	As far as you know, was your GP given enough information about your condition and the treatment you had at the hospital?	Yes	-	No
58	Do you think the GPs and nurses at your general practice did everything they could to support you while you were having cancer treatment?	Yes, definitely	Yes, to some extent	No, they could have done more
59	Did the different people treating and caring for you (such as GP, hospital doctors, hospital nurses, specialist nurses, community nurses) work well together to give you the best possible care?	Yes, always Yes, most of the time	Yes, some of the time	No, never
60	Have you been given a care plan? A care plan is a document that sets out your needs and goals for caring for your cancer. It is an agreement or plan between you and your health professional to help meet those goals.	Yes	-	No I do not know / understand what a care plan is
61	Overall, how would you rate the administration of your care (getting letters at the right time, doctors having the right notes/tests results, etc)?	Very good Good	Neither good nor bad	Quite bad Very bad
62	Overall, how do you feel about the length of time you had to wait when attending clinics and appointments for your cancer treatment?	About right	A little too long	Much too long
63	Since your diagnosis, has anyone discussed with you whether you would like to take part in cancer research?	Yes	-	No No, but I would have liked them to
64	Overall, how would you rate your care (rating from 1 to 10)?	7,8,9,10	4,5,6	0,1,2,3

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Annex C: Guide to positive scoring

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