Publication - Research and analysis
Scottish Cancer Patient Experience Survey 2015/16: Analysis of Free-text Comments
Analysis of free-text comments provided by patients as part of Scotland’s first Cancer Patient Experience Survey.
Appendix D Definitions of Negative Sub Themes
| Sub Theme | Definition (Participants felt…) |
|---|---|
| Poor care | Inadequate management of pain and side effects, exposure to infection, problems with treatment, or being cared for by staff who did not have sufficient knowledge of cancer |
| Difficulty getting into the system | Multiple visits to GP with symptoms before being sent for diagnostic tests. |
| Inconsistent or inappropriate information | Given wrong, unclear or conflicting information |
| Lack of faith in the system | Not trusting the monitoring process would pick up deterioration in health |
| Inadequate aftercare | Inadequate care after treatment and confusion over who was responsible for care after treatment |
| Inadequate contact | Inadequate amount of contact with cancer specialists |
| Poor communication | Staff did not listen or treat patients with respect |
| Involvement and choice | Lack of involvement and choice in decision making about treatment |
| Emotional Support and Responsiveness | Insufficient emotional support and lack of contact with staff who could provide support |
| Information | Did not receive the amount or type of information required to meet individual needs |
| Family | Lack of consideration for family |
| Specific and unusual circumstances | Specific individual circumstances not taken into account |
| Unsuitable or uncomfortable environment | Problems with food, hygiene, noise levels, and uncomfortable surroundings |
| Transport | Problems with parking or transport to and from hospital |
| Staffing Levels | Not enough staff to meet patient demand |
| Privacy | Lack of privacy when receiving bad news or during procedures |
| Ineffective and unreliable processes | Administrative problems, especially with results letters and organising appointments |
| Waits and delays | Lengthy waits for results and appointments |
| Fragmented care | Many different departments involved in treatment, lack of continuity of care. No one in overall control. |
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