Scottish cancer patient experience survey 2015-2016: exploring differences in patient experiences

Length of time to wait before first appointment with a hospital doctor

Males;
Retired;

No care plan;
CNS not easily contactable;
cancer has come back/spread;
SIMD 3, 4 and 5;
Upper GI, Urological & Other;

Had all the information needed about the diagnostic test beforehand

Retired;

No care plan;
CNS not easily contactable;
cancer has come back/spread;
Vision, Physical dis., Learning dis.,
Multiple conditions;
Gynaecological;

Length of time waited for test to be done

Retired;

No care plan;
CNS not easily contactable;
UR3, UR5;
Upper GI, Lower GI, Urological, Prostate, Gynaecological;

Results were explained in an understandable way

-

16-54;
No care plan;
CNS not easily contactable;
cancer has come back/spread;
Hearing, Multiple conditions;
Head & Neck, Urological, Prostate;

Had been told could bring a family member or friend when first told had cancer

Males;

35-74;
No care plan;
Difficult to contact/no CNS;
Skin, Head & Neck, Lung, Urological, Prostate, Gynaecological, Haematological

Way were told had cancer

Males;

16-74;
No care plan;
CNS not easily contactable;
cancer has come back/spread;
Lung, Upper GI, Lower GI, Urological, Prostate;

Understood explanation of what was wrong

SIMD 5;

No care plan;
CNS not easily contactable;
cancer has come back/spread;
Haematological;

Given written information about the type of cancer when first told

Skin, Prostate, Haematological;

No care plan;
Difficult to contact/no CNS;
cancer has come back/spread;
Multiple conditions

Treatment options explained before treatment started

-

25-34, 45-54;
No care plan;
CNS not easily contactable;
cancer has come back/spread;
Chronic pain, Multiple conditions;

Possible side effects of treatment(s) explained in an understandable way

Lung, Lower GI, Urological, Prostate, Haematological;

No care plan;
CNS not easily contactable;
cancer has come back/spread;
Hearing, Physical dis., Chronic pain, Other, Multiple conditions;

Offered practical advice and support in dealing with side effects of treatment(s)

Haematological;

No care plan;
CNS not easily contactable;
cancer has come back/spread;

Told about any side effects of the treatment(s) that could affect in the future rather than straightaway before treatment started

Skin, Lung, Lower GI, Urological, Prostate, Gynaecological, Haematological;

No care plan;
CNS not easily contactable;
Chronic pain, Multiple conditions;

Involved as much as wanted to be in decisions about care and treatment

Skin, Lung, Lower GI, Haematological;

25-54;
No care plan;
CNS not easily contactable;
cancer has come back/spread;
Learning dis., Chronic pain, Multiple conditions;

How often got understandable answers when asked CNS important questions

SIMD 2, 4 and 5;

No care plan;
CNS not easily contactable;
Learning dis., Chronic pain,
Multiple conditions;

Hospital staff gave information about support or self-help groups for people with cancer

Males;

No care plan;
CNS not easily contactable;
Chronic pain, Multiple conditions;
Head & Neck, Lung, Upper GI, Lower GI, Urological;

Hospital staff discussed/gave information about the impact cancer could have on day-to-day activities

Males;

Haematological;

No care plan;
CNS not easily contactable;
Learning dis., Chronic pain, Multiple conditions;
Urological;

Hospital staff gave information about how to get financial help or benefits entitled to

Lung, Upper GI, Gynaecological, Haematological;

No care plan;
CNS not easily contactable;
Urological;

Had all the information needed about operation beforehand

-

No care plan;
CNS not easily contactable;
cancer has come back/spread;

Member of staff explained how operation had gone in an understandable way afterwards

Males;

No care plan;
CNS not easily contactable;
cancer has come back/spread;
Multiple conditions;

Groups of doctors and nurses didn’t talk in front of me as though weren’t there

Males;
SIMD 2, 4 and 5;

16-24;
CNS not easily contactable;
Physical dis., Multiple conditions;
Lung, Upper GI, Lower GI, Urological, Prostate;

Had confidence and trust in doctors giving treatment

Retired;

No care plan;
Difficult to contact/no CNS;
cancer has come back/spread;

Family or someone else close able to talk to a doctor if they wanted to

Retired;

No care plan;
CNS not easily contactable;

Had confidence and trust in nurses giving treatment

Males;

25-64;
No care plan;
CNS neutral to contact;
cancer has come back/spread;
Physical dis., Multiple conditions;
Head & Neck, Upper GI, Lower GI, Urological, Prostate;

Enough nurses on duty to provide care in hospital

Males;

25-64;
No care plan;
Difficult to contact/no CNS;
cancer has come back/spread;
Upper GI, Lower GI, Prostate;

Doctors and nurses asked name preferred to be called by while in hospital

Males;
Retired, Other;
UR2, UR6;
Head & Neck, Lung, Upper GI, Lower GI, Urological, Haematological;

No care plan;
CNS not easily contactable;
Non-white;

Given enough privacy when discussing condition or treatment

Males;

25-64;
No care plan;
CNS not easily contactable;
cancer has come back/spread;
Upper GI, Lower GI;

Found someone on hospital staff to talk to about worries/fears during hospital visit

Treated < 1 year ago;
Retired, Don’t work due to illness/disability;

No care plan;
CNS not easily contactable;
cancer has come back/spread;

Hospital staff did everything they could to help control pain

-

16-24, 35-44;
No care plan;
CNS not easily contactable;
cancer has come back/spread;
Don’t work due to illness/disability;

Overall, felt treated with respect and dignity while in hospital

Males;

No care plan;
CNS not easily contactable;
cancer has come back/spread;

Given clear written information about what should/should not do after leaving hospital

Males;
Work PT, Don’t work due to illness/disability, Other;

No care plan;
CNS not easily contactable;
Chronic pain, Multiple conditions;

Told who to contact if worried about condition or treatment after leaving hospital by hospital staff

Work PT;

No care plan;
CNS not easily contactable;
Not heterosexual;
Learning dis., Chronic pain,
Multiple conditions;
UR6;

Found someone on the hospital staff to talk to about worries/ fears whilst being treated

Skin, Upper GI, Lower GI, Prostate, Gynaecological, Haematological;

No care plan;
CNS not easily contactable;

At last outpatients appointment, cancer doctor had all the right documents

-

CNS neutral to contact;
cancer has come back/spread;

Had all the information needed about radiotherapy treatment beforehand

-

No care plan;
CNS not easily contactable;
cancer has come back/spread;

Given enough information about whether radiotherapy was working in an understandable way once treatment had started

Males;

No care plan;
CNS not easily contactable;
Treated < 1 year ago;

Had all the information needed about chemotherapy treatment beforehand

Haematological;

No care plan;
CNS not easily contactable;

Given enough information about whether chemotherapy was working in an understandable way once treatment had started

Lung, Lower GI, Urological, Haematological, Other;

No care plan;
CNS not easily contactable;

Doctors or nurses gave family/ someone close all the information needed to help care at home

Males;

No care plan;
CNS not easily contactable;
cancer has come back/spread;

Given enough care and support from health or social services during treatment

Males;

No care plan;
CNS not easily contactable;
Chronic pain, Other,
Multiple conditions;

Given enough care and support from health or social services once treatment finished

Males;

No care plan;
CNS not easily contactable;

GP given enough information about condition and treatment had at hospital

Retired;
SIMD 4 and 5;

No care plan;
CNS not easily contactable;
cancer has come back/spread;

GPs and nurses at General Practice did everything they could to support while having treatment

Males;

No care plan;
CNS not easily contactable;
Chronic pain, Multiple conditions;
UR2;

Someone has discussed taking part in cancer research since diagnosis

25-64;
cancer has come back/spread;
Physical dis.;

No care plan;
Difficult to contact/no CNS;
UR2, UR6;
Skin, Head & Neck, Gynaecological;

Different people in my treatment and care worked well together to give best possible care

Males;

No care plan;
CNS not easily contactable;
cancer has come back/spread;
Vision, Chronic pain, Multiple conditions;

Overall rating of administration of care

SIMD 2;

No care plan;
CNS not easily contactable;
cancer has come back/spread;

Length of time to wait when attending clinics and appointments for treatment (overall)

-

16-74;
No care plan;
CNS not easily contactable;
cancer has come back/spread;

Overall rating of care

-

16-24, 35-54;
No care plan;
CNS not easily contactable;
cancer has come back/spread;
Vision, Chronic pain, Multiple conditions;