Scottish Cancer Patient Experience Survey 2015-16: technical report

5

Beforehand, did you have all the information you needed about your test?

Yes

No, I would have liked more written information

No, I would have liked more verbal information

6

Overall, how did you feel about the length of time you had to wait for your test to be done?

It was about right

It was a little too long

It was much too long

7

Were the results of the test explained in a way you could understand?

Yes, completely

Yes, to some extent

No, I did not understand the explanation

I did not have an explanation but would have liked one

9

When you were first told that you had cancer, had you been told you could bring a family member or friend with you?

Yes

No

10

How do you feel about the way you were told you had cancer?

It was done sensitively

It should have been done a bit more sensitively

It should have been done a lot more sensitively

11

Did you understand the explanation of what was wrong with you?

Yes, I completely understood it

Yes, I understood some of it

No, I did not understand it

12

When you were told you had cancer, were you given written information about the type of cancer you had?

Yes, and it was easy to understand

-

Yes, but it was difficult to understand

No, I was not given written information about the type of cancer I had

13

Before your cancer treatment started, were your treatment options explained to you?

Yes, completely

Yes, to some extent

No

14

Were the possible side effects of treatment(s) explained in a way you could understand?

Yes, definitely

Yes, to some extent

No, side effects were not explained

15

Were you offered practical advice and support in dealing with the side effects of your treatment(s)?

Yes, definitely

Yes, to some extent

No, I was not offered any practical advice or support

16

Before you started your treatment(s), were you also told about any side effects of the treatment that could affect you in the future rather than straight away?

Yes, definitely

Yes, to some extent

No, future side effects were not explained

17

Were you involved as much as you wanted to be in decisions about your care and treatment?

Yes, definitely

Yes, to some extent

No, but I would like to have been more involved

18

Were you given the name of a Clinical Nurse Specialist who would support you through your treatment?

Yes

-

No

20

When you have had important questions to ask your Clinical Nurse Specialist, how often have you got answers you could understand?

All or most of the time

Some of the time

Rarely or never

21

Did hospital staff give you information about support or self-help groups for people with cancer?

Yes

No, but I would have liked information

22

Did hospital staff discuss with you or give you information about the impact cancer could have on your day to day activities (for example, your work life or education)?

Yes

No, but I would have liked a discussion or information

23

Did hospital staff give you information about how to get financial help or any benefits you might be entitled to?

Yes

No, but I would have liked information

25

Beforehand, did you have all the information you needed about your operation?

Yes

No, I would have liked more written information

No, I would have liked more verbal information

26

After the operation, did a member of staff explain how it had gone in a way you could understand?

Yes, completely

Yes, to some extent

No, but I would have liked an explanation

29

Did groups of doctors and nurses talk in front of you as if you weren't there?

No

Yes, sometimes

Yes, often

30

Did you have confidence and trust in the doctors treating you?

Yes, in all of them

Yes, in some of them

No, in none of them

31

If your family or someone else close to you wanted to talk to a doctor, were they able to?

Yes, definitely

Yes, to some extent

No

32

Did you have confidence and trust in the ward nurses treating you?

Yes, in all of them

Yes, in some of them

No, in none of them

33

In your opinion, were there enough nurses on duty to care for you in hospital?

There were always or nearly always enough on duty

There were sometimes enough on duty

There were rarely or never enough on duty

34

While you were in hospital did the doctors and nurses ask you what name you prefer to be called by?

Yes, all of them did

Only some of them did

None of them did

35

Were you given enough privacy when discussing your condition or treatment?

Yes, always

Yes, sometimes

No

36

During your hospital visit, did you find someone on the hospital staff to talk to about your worries and fears?

Yes, definitely

Yes, to some extent

No

37

Do you think the hospital staff did everything they could to help control your pain?

Yes, definitely

Yes, to some extent

No

38

Overall, did you feel you were treated with respect and dignity while you were in hospital?

Yes, always

Yes, sometimes

No

39

Were you given clear written information about what you should or should not do after leaving hospital?

Yes

-

No

40

Did hospital staff tell you who to contact if you were worried about your condition or treatment after you left hospital?

Yes

-

No

43

While you were being treated as an outpatient or day case, did you find someone on the hospital staff to talk to about your worries and fears?

Yes, definitely

Yes, to some extent

No

44

The last time you had an outpatients appointment with a cancer doctor, did they have the right documents, such as medical notes, x-rays and test results?

Yes

-

No

47

Beforehand, did you have all of the information you needed about your radiotherapy treatment?

Yes, completely

Yes, to some extent

No

48

Once you started your treatment, were you given enough information about whether your radiotherapy was working in a way you could understand?

Yes, completely

Yes, to some extent

No

51

Beforehand, did you have all of the information you needed about your chemotherapy treatment?

Yes, completely

Yes, to some extent

No

52

Once you started your treatment, were you given enough information about whether your chemotherapy was working in a way you could understand?

Yes, completely

Yes, to some extent

No

54

Did the doctors or nurses give your family or someone close to you all the information they needed to help care for you at home?

Yes, definitely

Yes, to some extent

No

55

During your cancer treatment, were you given enough care and support from health or social services (for example, district nurses, home helps or physiotherapists)?

Yes, definitely

Yes, to some extent

No

56

Once your cancer treatment finished were you given enough care and support from health or social services (for example, district nurses, home helps or physiotherapists)?

Yes, definitely

Yes, to some extent

No

57

As far as you know, was your GP given enough information about your condition and the treatment you had at the hospital?

Yes

-

No

58

Do you think the GPs and nurses at your general practice did everything they could to support you while you were having cancer treatment?

Yes, definitely

Yes, to some extent

No, they could have done more

59

Did the different people treating and caring for you (such as GP, hospital doctors, hospital nurses, specialist nurses, community nurses) work well together to give you the best possible care?

Yes, always

Yes, most of the time

Yes, some of the time

No, never

60

Have you been given a care plan? A care plan is a document that sets out your needs and goals for caring for your cancer. It is an agreement or plan between you and your health professional to help meet those goals.

Yes

-

No

I do not know / understand what a care plan is

61

Overall, how would you rate the administration of your care (getting letters at the right time, doctors having the right notes/tests results, etc)?

Very good

Good

Neither good nor bad

Quite bad

Very bad

62

Overall, how do you feel about the length of time you had to wait when attending clinics and appointments for your cancer treatment?

About right

A little too long

Much too long

63

Since your diagnosis, has anyone discussed with you whether you would like to take part in cancer research?

Yes

-

No

No, but I would have liked them to

64

Overall, how would you rate your care (rating from 1 to 10)?

7,8,9,10

4,5,6

0,1,2,3