Independent Expert Group for the Unlocking the Value of Data Programme report: SG response

Annex B: References

1. The Unlocking the Value of Data Programme web page https://www.gov.scot/groups/unlocking-the-value-of-public-sector-data-for-public-benefit/

2. Terms of Reference for the Independent Expert Group for the Unlocking the Value of Data Programme. https://www.gov.scot/publications/unlocking-the-value-of-public-sector-data-for-public-benefit-terms-of-reference/

3. The Final Report by the Independent Expert Group for the Unlocking the Value of Data Programme https://www.gov.scot/publications/final-report-independent-expert-group-scottish-government-unlocking-value-data/pages/1/

4. Literature Review 1: Unlocking the Value of Data: Public Engagement https://www.gov.scot/publications/unlocking-value-scotlands-data-public-engagement-around-access-public-sector-data-private-sector-organisations/

5. Literature Review 2: Public Sector Personal Data Sharing: Framework and Principles

https://www.gov.scot/publications/public-sector-personal-data-sharing-framework-principles/

6. Literature Review 3: Exploring Data Value and Benefit-sharing

Private sector access to public sector personal data: exploring data value and benefit-sharing - gov.scot (www.gov.scot)

7. Research Data Scotland

https://www.researchdata.scot/

8. The Five Safes Framework https://www.researchdata.scot/engage-and-learn/data-explainers/what-is-the-five-safes-framework/

9. NHS Scotland Public Benefit and Privacy Panel for Health and Social Care (HSC-PBPP)

https://www.informationgovernance.scot.nhs.uk/pbpphsc/

10. Statistics Public Benefit and Privacy Panel (SPBPP) https://www.gov.scot/publications/scottish-government-statistics-request-our-data/

11. The Public Dialogue on the Use of Public Sector Data in Scotland https://www.gov.scot/publications/public-dialogue-use-data-public-sector-scotland/pages/14/

12. The National Data Guardian https://www.gov.uk/government/publications/putting-good-into-practice-a-public-dialogue-on-making-public-benefit-assessments-when-using-health-and-care-data

13. Open Government action plan 2021 to 2025 - commitment 3: data and digital commitment

https://www.gov.scot/publications/open-government-action-plan-2021-to-2025-commitment-3-data-and-digital-commitment/

14. Scotland’s Open Government Action Plan https://www.gov.scot/publications/scotlands-open-government-action-plan-2021-25/

15. Open Government Partnership https://www.opengovpartnership.org/

16. The AI Register

https://scottishairegister.com/

17. Safe Haven Trusted Research Environments https://www.researchdata.scot/accessing-data/information-for-researchers/tres-and-data-access/

18. Digital Economy Act Research Code of Practice

https://www.gov.uk/government/publications/digital-economy-act-2017-part-5-codes-of-practice/research-code-of-practice-and-accreditation-criteria

19. HSC-PBPP Reports: Outcomes https://www.informationgovernance.scot.nhs.uk/pbpphsc/hsc-pbpp-reports/

20. National Digital Strategy: A changing nation: how Scotland will thrive in a digital world

https://www.gov.scot/publications/a-changing-nation-how-scotland-will-thrive-in-a-digital-world/pages/an-ethical-digital-nation/

21. The draft Vision for Public Sector Data in Scotland

https://community.thedatalab.com/news/2275582

22. Sciencewise

https://sciencewise.org.uk/

23. The Digital Academy

https://digitalacademy.gov.scot/

24. Health and Social Care: Data Strategy https://www.gov.scot/publications/data-strategy-health-social-care-2/

25. Health and Social Care Data Strategy: 2024 Update - Progress and Priorities

https://www.gov.scot/publications/data-strategy-health-social-care-2024-update-progress-priorities/

26. The Scottish Approach to Service Design (SAtSD) https://www.gov.scot/publications/the-scottish-approach-to-service-design/

27. The Scottish Participation Handbook

https://www.gov.scot/publications/participation-handbook/

28. CivTech Challenge 10.7

https://www.civtech.scot/civtech-10-challenge-7-public-participation-in-decision-making

29. The National Standards for Community Engagement https://www.scdc.org.uk/what/national-standards

30. RDS Review of Operational Practice https://www.researchdata.scot/news-and-insights/commercial-access-to-public-sector-data-needs-to-change/

31. National Services Scotland

https://www.nss.nhs.scot/

32. The Seer 2 Platform

https://www.digihealthcare.scot/delivery-plan-2024-25/seer-2-platform/

33. The Scottish AI Alliance

https://www.scottishai.com/

34. The Data Lab

https://thedatalab.com/

35. The Life Sciences Scotland Industry Leadership Group https://www.lifesciencesscotland.com/

36. The NRS Industry Partnership Forum https://www.nhsresearchscotland.org.uk/industry/partnerships/industry-partnership-forum

37. Next-Generation Metadata Catalogue: Revolutionising Data Discovery in the Scottish Public Sector (blog) https://blogs.gov.scot/digital/2024/09/03/next-generation-metadata-catalogue-revolutionising-data-discovery-in-the-scottish-public-sector/

38. CivTech Challenge 10.4

https://www.civtech.scot/civtech-10-challenge-4-seamless-and-easy-to-manage-data-sharing-accross-organisations

39. Open Data website

https://find.data.gov.scot/

40. The Open Data Institute: Data Spectrum https://theodi.org/insights/tools/the-data-spectrum/

41. Open Data in Scotland: a blueprint for unlocking innovation, collaboration and impact https://www.gov.scot/publications/open-data-scotland-blueprint-unlocking-innovation-collaboration-impact/

42. Researcher Access Service

https://www.researchdata.scot/work-and-impact/researcher-access-service/

43. Scottish Safe Haven Network https://www.researchdata.scot/work-and-impact/scottish-safe-haven-network/

44. The National Information Governance Review

https://www.gov.scot/publications/information-governance-review-executive-summary/pages/1/

45. The British Standards Institution (BSI)

https://www.bsigroup.com/

46. The Innovative Healthcare Delivery Programme (IHDP) IHDP Innovative Healthcare Delivery Programme Scotland

47. Charter for Safe Havens in Scotland: Handling Unconsented Data from National Health Service Patient Records to Support Research and Statistics

https://www.gov.scot/publications/charter-safe-havens-scotland-handling-unconsented-data-national-health-service-patient-records-support-research-statistics/pages/5/

48. Patient and Public Involvement and Engagement (PPIE)

https://www.hdruk.ac.uk/about-us/involving-and-engaging-patients-and-the-public/

49. Public dialogue on data sharing outside of the public sector in Scotland

https://www.gov.scot/publications/public-dialogue-data-sharing-outside-public-sector-scotland/

50. NHS England Value Sharing Framework for NHS data partnerships https://transform.england.nhs.uk/key-tools-and-info/centre-improving-data-collaboration/value-sharing-framework-for-nhs-data-partnerships/